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Strange Question...


Deb M.
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I have a weird question for the ladies...

Does anyone have worse dysautonomia symptoms during their periods? Do you think hormonal changes can make things worse?

I was feeling better during the days on my new medicine until I got my period. Now I keep getting a pressing feeling on my chest and neck and lightheadedness as if I weren't on the meds...

It's very annoying!! I keep getting slightly better and then I get hit with a bad day... :)

Deb

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Hi, Deb. I have found by reading this board that a lot of women seem to be worse during their period. I am one of them. I don't know what the exact connection is but hormones do seem to play a part. My dysautonomia symptoms are mild compared to some people on this board but during that time of month they are worse. I get light headed, foggy minded, short of breath and my heart races more. My symptoms began during pregnancy so obviously that is another huge hormonal fluctuation.

Also, I have very weird symptom during my periods and it also occurs while on any kind of bcp. I have terrible circulation during this time. It is so bad that my chest hurts, my arms and legs fall asleep and feel tight at night, even when I am lying on my back with my arms and legs to my side. It feels as though I have rubber bands at the tops of my legs and arms and they aren't getting any blood. They don't turn blue or feel cold; they feel achey, tight and prickley. Massage helps but only temporarily. That is why I stopped my last bcp. I couldn't sleep at night because my circulation was so bad. Anyway, you are not alone on this.

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Yes, and yes. Not strange questions--hormones play a role in maintaining your blood pressure and heart rate.

Nina

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Definitely worse during this time of the month!

Some of the women on the forum are on Seasonale for this reason - which only allows you to have your period about 4 times a year I think. (I'm not on this)

Hang in here!

Lisa

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YES DEFINATELY!

I get much worse when it is time for me to have a period... it ***** big time..

usually during this time I try to take it easy and not add any extra stress to my body..

this is also usually the time the i pass out the most too, and get the severe migraines... UGH...

However I only get a period about once every 9-12 months.. i am terribly irregular..

so dont feel alone in feeling worse during menstrual time...

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I am pretty much only sympomatic to the point I can't handle during my hormone changes. I actually realized I'm worse around ovulation time than I am during my periods, even though it ***** around my periods too. I've always had more pain and stuff around ovulation pre POTS . I don't know if this is common or not but than again I never fall in to the "common" category

Dayna

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you'll probably come across my ramblings about this if you did/do a search on the topic, but for me the problems would come a few days BEFORE my period. as a result of hormone fluctuations it is actually most common for all women to have a mild drop in BP a day or two before one's period starts and for me i was way too sensitive to this. i would pass out like clockwork, the one advantage being that i knew when me period was on it's way?! being on birth control continuously has helped me immensely in this regard. i allow myself to get a period every 3-4 months & even then i don't get as ill.

:-)melissa

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My symptoms were so bad when I got my period that I usually ended up in the ER during that time. Now I am on birth control pills 365 days a year, so I never have a period. It's not a cure for POTS, but it's made my ER trips less frequent.

Bren

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