katyroq Posted March 17, 2018 Report Share Posted March 17, 2018 I'm taking florinef, and in the 1st month my potassium went from 4.5 to 3.5 (range 3.3-5). Its now 6 months and I want to make sure I'm still within range. The student health center at my university said it may not be covered by insurance. I realize that every insurance is different, but from what I understand it's very important to check potassium with this drug. Although my cardiologist who prescribed the florinef thinks it's a super benign drug and I'm only taking 0.1 MG. So she's not concerned and did not order the test obviously. Does anyone on florinef have to take the potassium testing into their own hands? Is it always the prescribing Dr who monitors it? I have a good doctor at the student health center who is helping me more with pots than my cardiologist, but she's the one who said insurance may not cover it. Sorry not feeling well today of nothing is making sense. I got a bad infection from low immune system due to florinef, which my cardiologist never warned me to be careful about. Quote Link to comment Share on other sites More sharing options...
Guest KiminOrlando Posted March 17, 2018 Report Share Posted March 17, 2018 My insurance covered it at .1 mg florinef, but my doctor ended up putting me on prescription potassium to solve the problem, ultimately because it is a known issue. You may want to look at that for a long term solution. Quote Link to comment Share on other sites More sharing options...
Always hoping Posted March 18, 2018 Report Share Posted March 18, 2018 I believe potassium is included in a regular CBC blood test which is very common, so I would think it would be covered. Best to call your insurance company to be sure though. Hope you feel better soon! Quote Link to comment Share on other sites More sharing options...
katyroq Posted March 18, 2018 Author Report Share Posted March 18, 2018 Thanks. So whether it's covered may be connected to the drug itself. I checked my statement from my bloodwork in November and it was $40 and lists 2 dates for payment. One is in December and it's "insurance denied :non covered services". Then in Feb is listed "path unbillable clin comp" with - $40 to bring my balance to 0. Not sure what that means but I call my insurance. Also "Always hoping"... What a lovely name. Touched me just now... Yes we must cling to hope. I sometimes think of looking for the little bubbles of hope that are rising even from the great dark depths of this illness. That's all we really have. Quote Link to comment Share on other sites More sharing options...
Always hoping Posted March 19, 2018 Report Share Posted March 19, 2018 Thanks Katyroq. Some days it's harder than others to hold onto that thought, but I try as much as I can. We really do learn to appreciate the "good" things so much more when dealing with this crazy thing! Be well. Quote Link to comment Share on other sites More sharing options...
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