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Posted

For anyone diagnosed with hyperadrenergic POTS and frequent chest pain: I recently had a cardiac cath done due to my frequent episodes of severe chest pain. I was diagnosed with Prinz Metal angina, that means the chest pain is caused by spasms of the coronary arteries. I also have Raynauds syndrome, which are spasms of the peripheral blood vessels causing my toes to turn blue and ice cold. I wanted to share this information because it might also be something happening to some of you.

I find it curious that some of us have problems with blood vessels dilating too much and others with them constricting too much - yet we all share similar symptoms! 

Posted

I have been using the Nitropatch for some time but that does not help too much. Plus - most POTSies do not tolerate Nitrates, so I don't know if it will help anyone that does not have this specific type of  POTS. I was scared beyond sanity having to put it on the first time - being that I passed out using Nitrate during a TTT. But it did not affect me badly and I have been using it for about 6 months. 

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