kt42487 Posted February 9, 2018 Report Share Posted February 9, 2018 Hi all, I’m not very active on the board diagnosed with POTS in 2012 which is secondary to Ehlers Danlos Syndrome (unspecified type). Anyways my POTS has always been managed with rest and increased fluids and electrolytes. I have occasional crashes where I just feel like garbage but they generally don’t last long. Well now I’m 6 weeks into all day chills in my legs and back, on and off tremors, nausea, heart burn, 100’s of PAC’s a day which I feel in my chest and neck, all over stinging itching, brain fog, and very bad pain in my neck and shoulders. PCP thinks it’s all POTS + anxiety/stress but ordered blood work and a 24hr urine to check for endocrine tumors. Started Zoloft and lorazepam (as needed) 2 days ago but generally still feel like crap. Any one have home remedy ideas to pull myself out of this? I’m a grad student and I’m feeling like if I can’t get it together I’m going to need to take a medical leave of absence. TIA! Quote Link to comment Share on other sites More sharing options...
vepa Posted February 9, 2018 Report Share Posted February 9, 2018 Exercise. I know that sounds like a nightmare during a flare. But deconditioning will make things worse and worse. It's a cruel cycle. So even if all you can manage to do is walk for a few minutes each day, that's where you start. When I flare, my instinct is to become glued to my bed or couch. But when I force myself to keep my body as active as I can, it shortens and eases flare symptoms. Quote Link to comment Share on other sites More sharing options...
kt42487 Posted February 9, 2018 Author Report Share Posted February 9, 2018 ugh you mean I need to move more when I just want to go to bed?! Haha just kidding, I have been busy and therefore slacking off on exercise, you’re probably right. It’s so unfair how quickly the flare up can hit and how slow it is to pull out of it. Quote Link to comment Share on other sites More sharing options...
WinterSown Posted February 9, 2018 Report Share Posted February 9, 2018 Exercise exercise exercise!!! And drink lots of fluids. and eat foods loaded with electrolytes. Quote Link to comment Share on other sites More sharing options...
Pistol Posted February 10, 2018 Report Share Posted February 10, 2018 When I get this bad I do exercises in bed until I can sit up, then I do them sitting ( light weights nd leg exercises ) and then start walking inch by inch, every time more. I also benefit from IV fluids. My PCP puts me in the hospital for 24 hours fluids and I am as good as new the next day! Hope you feel better soon. Quote Link to comment Share on other sites More sharing options...
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