Possible POTS?

[Karahall.ipr]

Ive been having heart symptoms for over a yr . When I sit to stand my pulse dosnt always spike but my bp goes crazy to compensate . From laying to standing my pulse increases a min 20 points and often more than doubles

Echo

Blood work

Cardiac enzyme 

X ray 

And EKGS all clean 

 They said my halter monitor showed spikes .

There are times when my pulse will jump when standing but sometimes its not as bad

Did anyone have these results yet still get diagnosed with POTS?

[MomtoGiuliana]

Welcome to the forum.

Here is an overview of POTS:

https://www.dinet.org/content/information-resources/pots/pots-an-overview-r95/

POTS is diagnosed with a Tilt Table Test typically.  It is defined by change in hr from prone to standing of at least 30 bpm.

Many people with POTS have normal blood work, EKGs and other test results.

[yogini]

Dysautomia usually isn't a spike but a sustained increase in HR or a drop in BP while standing.  It doesn't have to happen every time you stand, but you will see a consistent pattern.  20 point from laying to standing would be considered normal.  30 points or more on a consistent basis is POTS.  You may want to check your BP because if there is a sustained drop, that is also a sign of dysautonomia.

[WinterSown]

My numbers jump around all over the place--I am totally unstable. My cardiologist, EP and neuro all tell me my ANS is wonky. You can have multiple symptoms of dysautonomia without the magic combo showing up on diagnosis testing day, that does not mean you are not a dysautonomic, it just means your numbers aren't stable. I didn't faint on the TTT but I still got a diagnosis from an EP who looked at my history and asked all  the right questions.

 

 

[Cory]

Welcome to the world of Dysautonomia 

[Steven]

I get variable changes too. In case you are not aware, it's worth keeping in mind that the diagnostic criteria involve an increase of 30bpm within 10 minutes of standing (and staying still). I will often get a jump in heart rate immediately upon standing but sometimes I will get a moderate initial increase that continues to rise over several minutes, which often coincides with an initial increase in blood pressure. Even when I get a big jump initially upon standing that then goes down a bit and plateaus, if I stay standing the highest point within 10 minutes might be at, say, 7 or 9 minutes into standing. I usually don't bother standing for 10 minutes, because the first few minutes tend to show an increase of more than 30bpm and give enough indication of what's going on.