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Has anyone needed a pacemaker


Samantha91
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Sorry to here to have not had any success with medications. Have you attempted Corlanor? I have POTS and do have a pacemaker.  The pacemaker was life changing for me. Although it stopped the syncope, it did not stop the presyncope symptoms. A combination of pacemaker and Corlanor has been a success for me. Note: I had pacemaker placed before dx of POTS for heart pauses and sick sinus syndrome.  I think it is hard to get a pacemaker approved for dx of POTS alone.

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I have a pacemaker, life changing for me. I went from passing out 20+ times a day to not at all for 6 months. Due to complications from gastroperesis, infections, osteomyolitis I have had a very tough time trying to stay hydrated etc. We are hopeful, and Cardio expects, that once we get passed these issues and the deconditioning that has set in that I will get back to where I was post pacemaker placement. Please feel free to ask me any questions or PM me if you like. Hope you soon find what works for you!

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My cardiologist who monitors my POTS & NCS evaluated me for a pacemaker by doing a (for me, second) Tilt Table Test specifically for that very purpose. As I understand it, he was wanting to see if my heart was erroneously sending itself incorrect signals versus was it a healthy heart being sent incorrect signals from an “outside source” (my nervous system). 

In my case, he determined that a pacemaker would not solve my particular heart rate issues. I appreciated him making sure before putting me through a pacemaker surgery. 

Edited by Missy M
correcting a typo
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