Samantha91 Posted January 14, 2018 Report Share Posted January 14, 2018 Hello, im just wondering if anyone has tried all the heart medications and none has worked for you? if so, did you have to have a pacemaker? no medications are helping me and feel like I have no more options left?? Quote Link to comment Share on other sites More sharing options...
Nurseslimmer Posted January 15, 2018 Report Share Posted January 15, 2018 Sorry to here to have not had any success with medications. Have you attempted Corlanor? I have POTS and do have a pacemaker. The pacemaker was life changing for me. Although it stopped the syncope, it did not stop the presyncope symptoms. A combination of pacemaker and Corlanor has been a success for me. Note: I had pacemaker placed before dx of POTS for heart pauses and sick sinus syndrome. I think it is hard to get a pacemaker approved for dx of POTS alone. Quote Link to comment Share on other sites More sharing options...
Samantha91 Posted January 15, 2018 Author Report Share Posted January 15, 2018 I have tried coralan and I’m back on it again now along with Midodrine. And I’m having no success. I’ve only got a fast heartbeat at all times when standing. How come you still have to take medication when you have a pacemaker? Quote Link to comment Share on other sites More sharing options...
Guest ANCY Posted January 17, 2018 Report Share Posted January 17, 2018 I have a pacemaker, life changing for me. I went from passing out 20+ times a day to not at all for 6 months. Due to complications from gastroperesis, infections, osteomyolitis I have had a very tough time trying to stay hydrated etc. We are hopeful, and Cardio expects, that once we get passed these issues and the deconditioning that has set in that I will get back to where I was post pacemaker placement. Please feel free to ask me any questions or PM me if you like. Hope you soon find what works for you! Quote Link to comment Share on other sites More sharing options...
Missy M Posted January 19, 2018 Report Share Posted January 19, 2018 (edited) My cardiologist who monitors my POTS & NCS evaluated me for a pacemaker by doing a (for me, second) Tilt Table Test specifically for that very purpose. As I understand it, he was wanting to see if my heart was erroneously sending itself incorrect signals versus was it a healthy heart being sent incorrect signals from an “outside source” (my nervous system). In my case, he determined that a pacemaker would not solve my particular heart rate issues. I appreciated him making sure before putting me through a pacemaker surgery. Edited January 19, 2018 by Missy M correcting a typo Quote Link to comment Share on other sites More sharing options...
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