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IV fluids in the UK for POTS


bombsh3ll

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Hi, I am really desperate to try regular IV fluids for my POTS which is severe and refractory to all the standard medications. I have heard of the occasional patient getting this but that it is very hard to convince doctors. I believe some patients at the NHS autonomic unit at UCLH are now receiving saline via PICC/PORT. 

I would love to hear from anyone in the UK who has managed to access IV fluids either NHS or private. 

 

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