Sherri Posted November 30, 2017 Report Share Posted November 30, 2017 Hi I have POTS and Fibromyalgia, plus Hashimoto's Disease, and recently was put on 4.5 of Naltrexone. I started immediately to have a funny feeling in my head and some nausea. Also made me very sleepy but could not sleep. I have been diagnosed with Lyme Disease and already having sleep problems, so that might be making things worse. Now my low blood pressure has went very high ( 140/ 100) and I wondered if anyone else has taken the Naltrexone and had problems with it? Did you lower the dose? Thanks Quote Link to comment Share on other sites More sharing options...
Ryry1305 Posted December 7, 2017 Report Share Posted December 7, 2017 I also have Lyme and and on LDN. I have not been able to tolerate it very well though Bc of heard palpitations. I am only on .5 which is a very low dose. It really does help me but I feel like it's very stimulating and may be negatively effecting my PoTs and heart issues. You are on the very highest dose ( for low dose naltrexone). My dr days you have to play around with the dosage, till you find your right dose. It's definitely not one size fits all. I do know that LDN has helped a lot of people with lyme and can help modulate the immune system. So I do think it's really beneficial. Hope this helps! It seems quite a high dose to start on. Everything I have heard is that you build it up slowly. Most I know start at 1 or 1.5. Quote Link to comment Share on other sites More sharing options...
Ryry1305 Posted December 7, 2017 Report Share Posted December 7, 2017 Also, LDN is notorious for affecting sleep/ insomnia. Quote Link to comment Share on other sites More sharing options...
bombsh3ll Posted December 7, 2017 Report Share Posted December 7, 2017 I tried a small dose of 1.5mg LDN, once and once only! I planned to increase gradually to about 4.5mg as tolerated. I am an opioid responder (pain and hyperadrenergic symptoms wise) and was hoping to boost my endogenous opioids. My reaction to it was similar to someone withdrawing severely from heroin - sweating, extreme tachycardia, high BP, shaking, anxiety, agitation and general malaise. I did't sleep at all that night. I guess I must be producing some of my own opioids after all for that to happen! Quote Link to comment Share on other sites More sharing options...
kpflma Posted January 9, 2018 Report Share Posted January 9, 2018 I take 2.5 ml before bed. I tried different doses before hitting on that one. If I go higher, I get crazy dreams and my sleep is poor. Also, if I take it during the day, it does not help. The evening dose has helped quite a bit however! Good luck! Quote Link to comment Share on other sites More sharing options...
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