Just general queries about POTS

[Sam123]

I have two specific queries for whose diagnosed with POTS. 

1- When taking medication for POTS, can you go out and walk for about half an hour? For me, when taking propranolol, I can walk such period. And even sometimes without medication. But what I feel worse is the fear and brain fog when go far from my house. If Im near my house I can walk for longer periods.

2- Do you feel dizzy instantly after standing up? I dont feel dizziness after standing although HR increases in most times by 25-30 beats. Inside the  house, I can move  and still standing without feeling dizziness. What I feel in fact is muscle weakness and some shaking in legs if I stayed for prolonged period (1 hour or so). I can do upright aerobic exercises for 20 minutes (with propranolol or without it). My heart rate reach 140 beats after 20 minutes upright exercise or running inside house.

Just I want to take an idea about my case. I live in Yemen, and I will stay here my lifetime without diagnosis. We dont have TTT  and If I want such test, I must travel to another country, which is very difficult due to the current unrest here in Yemen. Therefore, I hop you could help me understand what is happening to me.

[angelloz]

I too do better with standing and walking at home...probably knowing I can lie down suddenly if I need to. Staying hydrated and eating salty foods helps me but I have low blood volume. Have you done the poor man's tilt table test.??? Take your pulse rate lying down for at least 10 minutes. Then 1 minute after standing, then 5 minutes after standing. I wish you all the best. I'm sure others will have some thoughts to add. Ask any additional questions that you may have.

[Sam123]

1 hour ago, angelloz said:

I too do better with standing and walking at home...probably knowing I can lie down suddenly if I need to. Staying hydrated and eating salty foods helps me but I have low blood volume. Have you done the poor man's tilt table test.??? Take your pulse rate lying down for at least 10 minutes. Then 1 minute after standing, then 5 minutes after standing. I wish you all the best. I'm sure others will have some thoughts to add. Ask any additional questions that you may have.

@angelloz Thanks for the information. Actually, I do measurements daily for the BP and HR. Below is an example of what I get:

8-11-2017 (8 AM) - Mild Symptoms

Laying down:      100/70             75

Standing:

1 min.                    100/70            93

2 min.                     91/65             88 

3 min.                     94/76             89

5 min.                     97/73             94

8min.                       97/72            94 

10 min.                    95/74            92

9-11-2017 (10 AM) Mild Symptms

Laying down:      105/62              86

Standing:

1 min.                    97/72              106

3 min.                     96/70             102 

5 min.                     103/74           101

7 min.                     93/71              102

10 min.                    90/71             108

10-11-2017 (8 AM, while in Bed) - Moderate Symptoms

Laying down:      111/70                85

Standing:

1 min.                   112/101             117

2 min.                   130/108             113 

3 min.                   103/74               115

5 min.                   93/71                 107

6 min.                   90/71                  116

 

9-11-2017 (10 AM) Moderate SYmptoms

Laying down:       102/70              90

Standing

1 min.                    102/67            120

2 min.                     98/70             115 

5 min.                     98/73             117

7 min.                     99/72              117

10 min.                    99/71             120