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Anyone here have AAG?

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Hi all, 

I discovered very recently that I have blimmin sjogrens. I kept saying this 3 years ago but was fobbed off. Only the lip biopsy which I went and paid for confirmed it. My own rheumatologist wouldn't have it as I don't have sjogrens antibodies. So now I've asked for ganglionic acetylcholine antibody test as the nature of my full body small fibre neuropathy and the way the autonomic stuff came on makes me really suspect this.

From what I have read, no one seems to have a clue about this problem either. Anyone here have autoimmune autonomic ganglionopathy and having effective and appropriate treatment with any success?

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