persephone Posted July 4, 2005 Report Share Posted July 4, 2005 I don't get symptoms to the same degree all the time- some weeks I can be ok. Others, horrific.I just wondered how many other people are like me. Look at my grad week only 10 days ago--I felt and looked amazingly well.But now--well, the number of times I've lost my vision today is in double figures. I know overdoing it has cost me dearly, but I don't care so much--it was worth it.It got me thinking- do Doctors expect us to collapse/get faint every time we stand? Is that why maybe so many dismiss us as nuts? because they think it can't wax and wane the way that it does?what do you guys think? Quote Link to comment Share on other sites More sharing options...
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