mindylee1 Posted July 2, 2005 Report Share Posted July 2, 2005 After 2 years of this insane naseua and vomitting, They finally dx me at Cleveland with CVS. I've been on everything you name it..Zofan, Phenergan....ect. Well On tues we are starting at home Iv treatments once a week of Anzemet and fluids. I have recently been on the ancement pills and no luck. I am excited about this for two reasons 1. hopefully on a weekly regimen this may actually stay in my system 2. Bring on the fluids!!!! But I've never had Anzemet in IV.. has anyone?? I'm really having some complications with all this vomitting. I've been on Coummidin for a year now due to my blood clots and I've been vomitting so much that there is often blood. I get really worried that if I can see it, what is going on on the inside of me. It has to be tearing me up.Any advice would be great thanksmindy Quote Link to comment Share on other sites More sharing options...
briarrose Posted July 2, 2005 Report Share Posted July 2, 2005 I'm not sure about the med but it's certainly nice to have a diagnosis and plan. I believe CVS is aka Abdominal migraine so you might be interested in this website as there is a listing for NORD towards the bottom and they usually have some good info.Cyclic Vomiting SyndromeNational Organization for Rare DisordersTopic Contents Synonyms Disorder Subdivisions General Discussion Resources For a Complete Report Email this article Print this article Important It is possible that the main title of the report Cyclic Vomiting Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report. SynonymsAbdominal Migraine Childhood Cyclic Vomiting Chronic Vomiting in Childhood Periodic Syndrome Recurrent Vomiting Bilious Attacks (back to top) Disorder SubdivisionsNone (back to top) General DiscussionCyclic vomiting syndrome is a rare digestive disorder that affects children and adults. This disorder is characterized by chronic nausea, vomiting, extreme fatigue, motion sickness, abdominal pain and, in some cases, dizziness (vertigo) that may last for hours to days. These episodes of symptoms seem to be similar in onset and duration for each affected individual. The exact cause of cyclic vomiting syndrome is not known..(back to top) ResourcesCyclic Vomiting Syndrome Association (CVSA) 3585 Cedar Hill Road NWCanal Winchester, OH 43110USATel: 6148372586Fax: 6148372586Email: waitesd@cvsaonline.orgInternet: http://www.cvsaonline.orgNational Headache Foundation 820 North OrleansSuite 217Chicago, IL 60610-3132USATel: 3124605399Fax: 3124609049Tel: 8886435552Email: nhf1970@headaches.orgInternet: http://www.headaches.orgNIH/National Digestive Diseases Information Clearinghouse 2 Information WayBethesda, MD 20892-3570Tel: (301)654-3810Fax: (301)907-8906Tel: (800)891-5389Email: nddic@info.niddk.nih.govInternet: http://www.niddk.nih.gov(back to top) For a Complete ReportThis is an abstract of a report from the National Organization for Rare Disorders, Inc. ? (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians. It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report. This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder. For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org Last Updated: 4/25/2002Copyright 1992, 1998, 1999, 2002 National Organization for Rare Disorders, Inc. Quote Link to comment Share on other sites More sharing options...
Sunfish Posted July 5, 2005 Report Share Posted July 5, 2005 mindy -congrats on the diagnosis. i know that it isn't a magic answer, but also know what a relief it can be to have a name in terms of moving forward. as someone who has had lots of issues with nausea/vomiting in the past year, i'm curious as to what the diagnosis of CVS was/is based on? i know the symptom patterns, but is there any specific testing other than ruling other things out? such as if one has gastroparesis does that negate the possibility of CVS? just curious! hope your new plan gets things headed in a better direction for you....:-)melissa Quote Link to comment Share on other sites More sharing options...
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