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Goldstec

Share your story in the next newsletter

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Hello all! 

We are looking for someone who would like to share her experiences with Dysautonomia in our next newsletter. Particularly, we would like to interview an individual who is currently going through (or just went through) the process of getting diagnosed with Dysautonomia. You do not have to be formally diagnosed to be featured in this article. We hope to share your story in an effort to connect our readers through shared experience. 

The process is simple, and will only take about 30 minutes of your time. Please respond below if interested and share a very quick summary (1-2 sentences) of your experience with Dysautonomia/your current stage in the diagnostic process.

Thank you! 

Chelsea Goldstein

Meet the Member Columnist 

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Diagnosed 9 months, been through a lot of testing, seeing specialist, allergies to most meds I've tried, still trying to find a medication, trying to keep my full time job,mother of a ten year old boy, from Australia, hospitalised on average every 4-5 weeks.

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diagnosed with hyperPOTS and NCS at age 42 - now 51. Disabled RN ( due to POTS ). Took 2 years and 5 cardiologists to get diagnosis, mostly due to my own research leading me to self-diagnosing POTS. Today somewhat stabilized but still need ongoing treatment changes due to changing symptoms. Mother and sister also have POTS, other sister and 2 nieces have symptoms of POTS but not yet diagnosed. 

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Had an undiagnosed episode about 6 years ago, then had another episode in November and passed out at work.  Informally diagnosed in the hospital and sent to Cardiologist for eval and treatment, now getting ready to see an EP and do more testing.  I work part-time as an RN, homeschool 3 young kids, and live on 40 acres with my husband and kids.  Have done much research on my own.

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