Jump to content

Heart fluctuations at rest


Recommended Posts

Hello 

I recently was diagnosed with autonomic dysfunction it sounds like pots from what I read here 

I get fluctuations of heart rate from 69 to 90 while resting 

Standing my heart goes anywhere from 110 to 150 

Is this normal for you guys as well, I feel horrible like my life is falling apart.

Can't take beta blockers because make heart rate to low. Just can't function well has anyone gotten on ssi benefits for this? And is your heart rate always bouncing too? 

My doctor says it won't kill me but it is really scary I am 47 yr old male had surgery in December they think that is where it came from.

Link to comment
Share on other sites

My hr is 70-80 at rest and goes up to 150 standing . Pots is a terrible thing . I havent been able to take beta blockers either, lowers my bp too much.  I need to look into ssi also . Are you in Arizona ? Where are you being treated ?

Link to comment
Share on other sites

Nowhere yet cardiologist did EKG, stress test, ct with iodine, electrocardiogram, holter monitor for 14 days all good just pvc' s and pac's said they were Benin 

Heart rate went up to 125 while standing said I had autonomic dysfunction gave me paxil and sent me home.

Link to comment
Share on other sites

Hey. Don't have time to give you a full answer in getting disability, but short answer, you are going to need a lawyer most likely. 

Use the search function to look up this issue and read what has already been posted. If you have more questions, we will do our best to help.

Your doctor needs to give you an actual diagnosis. You would be surprised when your records are pulled that many doctors won't give a dysautonomia diagnosis. Do you know what your medical coding is? Some doctors won't even do a Tilt Table Test for you to have metrics to show Social Security. Maybe your docs did.

I don't know what you guys have to work with. Read up on here, see if you can get copies from your docs, then hit us with questions.

If you have private disability insurance, they may assist with attorney fees.

Good luck!

Kim 

Link to comment
Share on other sites

  • SarahA33 changed the title to Heart fluctuations at rest

Yes. My resting can dip to 49, but my O2 takes a dive when that happens, and can go up to around 103. I tend to pass out in the 150s. I don't really check my BP much at rest any more because my problem is standing. That is a good question. 

I'm a big mess. I have autoimmune diseases that aided in my Social Security Disability claim, and I passed out at various doctor appointments which were all documented and it was STILL a very hard fought battle. And they have a clock ticking on you from your last day of work until you win.

Check out some articles on this site about it. I got SO lucky because I didn't know any of this and it was before I found this site. I got denied multiple times with an attorney, but I think other people's claims went more smoothly.

Life like this is a big adjustment. For some people it is a temporary condition, so you may be one of the lucky ones.

Kim 

 

Link to comment
Share on other sites

I got it when I was 13. I'm turning 47 in a couple of weeks. I was WAY more functional when it first happened and I was a very active teenager, so it wasn't deconditioning. Once I started working and going to college, I had less time spent being active and things got worse. Once I got a desk job, things quickly spiraled out of control. 

I think I was told most people recover after about 3 years. Mine keeps getting progressively worse so they called it Pure Autonomic Failure instead of just POTS. There are all different types and to be honest, my diagnosis keeps 'evolving'. 

I hope yours ends up being the short term version. I missed out on a lot of things 'normal' people get to do because of this illness. 

Kim 

Link to comment
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

 Share

×
×
  • Create New...