Likestobemom Posted February 2, 2017 Report Share Posted February 2, 2017 Does anyone know why the traditional fluid/salt recommendations are not recommended with hyperadrenergic POTS? I am chronically dehydrated and have an undetectable vasopressin. It looks like I will be put on desmopressin which requires salt intake. Does anyone understand how this fits together? Quote Link to comment Share on other sites More sharing options...
Lily Posted February 2, 2017 Report Share Posted February 2, 2017 The recommendation is there, I think, because the goal of water + salt is to raise blood volume, which in turn can raise blood pressure. People with hyperPOTS tend to develop high BP, so doing something that could make it worse is not recommended. BUT water+ salt can still be prescribed if your doctor thinks it will help anyway. Also, only about 1/3 of people with regular high BP are salt-sensitive, so maybe it is not a necessary recommendation for everyone. Example: I have extremely high norepinepherine (NE) and blood pooling upon standing. No tests other than the tilt table with catecholamines. Official diagnosis is hyperandrenergic, but there is EDS type 3 in the family and my doc is not sure if I have it or not. Hypothesis is that my body cranks out NE because my veins are too stretchy and won't respond. Anyway, doc has me taking 8-10 grams of salt and 3-4 liters of water daily, compression hose, and clonidine (to supress my sympathetic nervous system). It definitely helps and I have more symptoms if I forget some water/salt. If my BP would have been raised by the salt and water, the clonidine will keep it down because it also decreases BP. I suppose your doctor will tailor his recommendations to your specific malfunctions, and if that means extra water and salt for a hyperPOTS patient, then so be it. Quote Link to comment Share on other sites More sharing options...
yogini Posted February 2, 2017 Report Share Posted February 2, 2017 Your doctor could answer best. But vasopressin/high BP are the body's natural responses to dehydration. There isn't enough blood so the vessels squeeze harder to try to get blood to the vital organs. Fixing the dehydration may lower the BP. Quote Link to comment Share on other sites More sharing options...
kalamazoo Posted February 3, 2017 Report Share Posted February 3, 2017 Im hyper pots. I eat little to no salt and drink a ton of water. My bp is usually 125/90. But i also eat a gluten free vegan diet as well per doctor recommendation. Of course every is different but i feel so much better. Talk to your doctor more for sure. Quote Link to comment Share on other sites More sharing options...
SarahA33 Posted February 3, 2017 Report Share Posted February 3, 2017 I have hyper pots, and high bp. My POTS dr. recommends 5-7g of sodium and 2-3 liters of fluids daily. The members above described the reasoning for this perfectly. Of course we're all different though. Welcome to DINET! Quote Link to comment Share on other sites More sharing options...
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