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First specialist appointment!


katcanny
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Hi Katcanny - yes I did go to the Austin Blood Pressure Clinic, they were my treating clinic for a few years when I lived in Melbourne. When you arrive they normally do a basic lying standing blood pressure test and then you meet with Chris or one of the Registrar doctors working with him. The doctor will discuss any further testing required and treatment options. I gather from your previous posts that you are on Florinef already so my guess is they will look at whether you need another medication to supplement that - e.g. Midodrine. 

Unfortunately there are no quick solutions to feeling better with POTS and it's often a case of a slow recovery and managing symptoms as much as possible with meds, fluids, salt, exercise etc.  If you are struggling to return to work, aside from Centrelink support, you can check with your superannuation fund whether you have default income protection insurance that will make payments while you're too ill to work. The insurance would typically pay 75% of your normal salary.

Best wishes.

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Thank you so very much that was so informative, I am trying to be the perfect patient I take florinef, eat small regular meals, drink 3 litres of water per day, have upped my salt, wear compression stockings even in 30 degree heat and try and be upright for as long as I can each and every day.. I'm hoping they can give me something to help me I have a 10 year old son and watching him not being able to do the things we use especially since it's the school holidays is killing me! I feel like the worst mum in the world at the moment I hate being like this it's not fair on him! 

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