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Biljana

Hello from Sydney

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Hi everyone

I just thought I would introduce myself and say hello! Thank you for accepting me as a member of this amazing community. I have been diagnosed with POTS over two years ago. I was 'lucky' to get diagnosed pretty quickly (within 4 months after experiencing first symptoms) considering that POTS is not so much known here among health professionals. Currently I'm on Inderal, Midodrine, B12 injections, vitamin D, salt tablets and iron supplements. Every medication I take works for me for about six months and then I have to stop them and trial something new. It looks like I'll be stopping Midodrine soon and starting Mestinon. My health has been declining especially in the last six months. I'm looking forward to getting to know other members and reading about your experiences. Forums like this are lifesavers. 

 

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Welcome,  we learn so much from each other. Hope Mestinon works well for you!

 

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Hi Bijana

Welcome from a fellow Aussie, based in Brisbane. Sounds like you're getting good quality medical support in Sydney. I take Mestinon and find it very helpful.

All the best!

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Hi Biljana,

I live in Sydney too.

I was diagnosed with POTS in 2014 after bouncing around specialists for quite a few years. 

This forum is the best support network. 

Please feel free to message me if you want to swap notes about Sydney doctors who know about POTS - they are rare!

Hope your health improves soon.

Angie

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