Biljana Posted December 9, 2016 Report Share Posted December 9, 2016 Hi everyone I just thought I would introduce myself and say hello! Thank you for accepting me as a member of this amazing community. I have been diagnosed with POTS over two years ago. I was 'lucky' to get diagnosed pretty quickly (within 4 months after experiencing first symptoms) considering that POTS is not so much known here among health professionals. Currently I'm on Inderal, Midodrine, B12 injections, vitamin D, salt tablets and iron supplements. Every medication I take works for me for about six months and then I have to stop them and trial something new. It looks like I'll be stopping Midodrine soon and starting Mestinon. My health has been declining especially in the last six months. I'm looking forward to getting to know other members and reading about your experiences. Forums like this are lifesavers. Quote Link to comment Share on other sites More sharing options...
angelloz Posted December 9, 2016 Report Share Posted December 9, 2016 Welcome, we learn so much from each other. Hope Mestinon works well for you! Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted December 9, 2016 Report Share Posted December 9, 2016 Welcome. Glad you found the forum. Hope you start to feel better soon. Quote Link to comment Share on other sites More sharing options...
statesof Posted December 9, 2016 Report Share Posted December 9, 2016 Welcome Biljana, feel free to ask any questions you may have, as there is plenty of practical experience to share on the forum. Quote Link to comment Share on other sites More sharing options...
corina Posted December 9, 2016 Report Share Posted December 9, 2016 Hi Biljana! Welcome to DINET!!! Quote Link to comment Share on other sites More sharing options...
Macca Posted December 9, 2016 Report Share Posted December 9, 2016 Hi Bijana Welcome from a fellow Aussie, based in Brisbane. Sounds like you're getting good quality medical support in Sydney. I take Mestinon and find it very helpful. All the best! Quote Link to comment Share on other sites More sharing options...
Katybug Posted December 10, 2016 Report Share Posted December 10, 2016 Welcome! Quote Link to comment Share on other sites More sharing options...
AngieP Posted December 12, 2016 Report Share Posted December 12, 2016 Hi Biljana, I live in Sydney too. I was diagnosed with POTS in 2014 after bouncing around specialists for quite a few years. This forum is the best support network. Please feel free to message me if you want to swap notes about Sydney doctors who know about POTS - they are rare! Hope your health improves soon. Angie Quote Link to comment Share on other sites More sharing options...
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