TCP Posted November 25, 2016 Report Share Posted November 25, 2016 Hello. I think I have SFN along with EDS and POTS (plus possible MCAS/MCAD). I am on Gabapentin and Nortriptyline since 2007. I have noticed the neuropathic pain eases when I lie down, whereas most people I know with neuropathic pain says their's gets worse at night. No one is symptom-free of this nerve pain like me when I lie down. I have the pain all over my body, even my head. It is intense and burning, prickling and also deeper nerve pain and shocks/stabbing sensations. Anyone else pain-free at night? Quote Link to comment Share on other sites More sharing options...
Katybug Posted November 25, 2016 Report Share Posted November 25, 2016 (edited) Have you had any issues with or could you have issues with spinal instability which might be impinging on nerves when upright but allows for relief when you lie down? Spinal instability is quite common in EDS? Tethered cord? Chiari? Edited November 25, 2016 by Katybug Quote Link to comment Share on other sites More sharing options...
angelloz Posted November 25, 2016 Report Share Posted November 25, 2016 (edited) My body pain is not gone but so much better when I lie down. Shoulder, jaw and head stay about the same but the back pain and overall body pain decreases. I suspect I have a connective tissue problem but haven't addressed this yet. I have been diagnosed with MCAD but antihistamines make me feel worse. I am very sensitive to medications. At the Mayo Clinic it showed some SFN. Do you know if the pain from SFN is progressive? I am getting more pain as time goes on ..yet there is a day here or there when it is very slight. So many mysteries. I hope you are having a great day. Happy Holiday in advance :). Edited November 27, 2016 by angelloz Spelling error Quote Link to comment Share on other sites More sharing options...
TCP Posted November 26, 2016 Author Report Share Posted November 26, 2016 I have neuropathic pain all over my body and head. I am guessing it's SFN as I know that there is a connection with EDS and POTS. It came on when the POTS symptoms came on nine years ago. Quote Link to comment Share on other sites More sharing options...
TCP Posted November 26, 2016 Author Report Share Posted November 26, 2016 I don't think that I have Chiari, but I do have degeneration lumbar and cervical, plus a twisted spine and tilted pelvis. I have a pronounced hump at the top of my spine and my head is thrust forwards. Thanks for your replies. I hope you are doing as well as possible. Quote Link to comment Share on other sites More sharing options...
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