How long have you had pots?

[DottyB53]

I have had pots for 20 plus years.  Of late it seems to be worse.........anyone with pots this long?

 

Thanks

Dotty

[Stephanieann]

I've officially had POTS for a year. Developed during my second pregnancy. Once I learned what POTS was, I think I had signs of it as a teen and then after my first pregnancy, that eventually went away. This time is the worst by far. 

[Bigskyfam]

3 yrs for me diagnosed, never fully bounced back after third preg. 9 yrs ago. Very subtle pots symptoms my whole life.

[statesof]

POTS for 7 years.

[Roxy]

Official diagnosis of NCS in 2005 and POTS in 2010 I think, but had been trying for diagnosis since around 1990. I had the same symptoms then as I do now, just took getting a doctor who knew about dysautonomia for official diagnosis. 

[TCP]

I think the autonomic dysfunction started after Glandular Fever in 1984. The actual POTS symptoms appeared in 2005 and then worsened in 2007. I was diagnosed a couple of years ago. I have EDS and this was only diagnosed in 2013. It looks like I also have Mast Cell issues. 

[DizzyGirls]

Daughters diagnosed POTS almost a year ago, signs, though, since 2014.  BUT, lots of EDS III troubles all their lives. 

[Katybug]

I've been seriously I'll from POTS since 2007. However, I now know that I had subtle symptoms of autonomic dysfunction and EDS complications all my life. Nothing was disabling enough to stop me or make a doctor really put it all together until 2007. Then it took 3 1/2 years to start figuring out what the proper diagnoses really were.

[momandmore]

My tachycardia was first diagnosed in 2001, during my third pregnancy. It never went away and got really bad again in my fourth pregnancy. Over the years, my doctors told me it was anxiety. I kind of believed it at first because I really thought something could be wrong with me; having heart rates in the 160s can actually make a person nervous. 

What I noticed after awhile is that my heart rate jumped when I was sitting or standing up. I also realized anxiety meds never brought my heart rate down.

Finally, I got frustrated because my heart rate was still wonky after everything I was doing to try to get healthy and I felt poorly for years with no medical reason. So I went back to my doctor insisting on answers and gave him an article I found on POTS and he referred me back to the same cardiologist I had seen before. When he gave me the anxiety explanation again, I nearly screamed at him, "I know what anxiety is and I'm not anxious! And I haven't been continually anxious for twelve years!" he actually believed me and thought it could be IST. But when an EP looked at all my test results, he said no to the IST idea and said I have a POTSy dysautonomia.

So almost fifteen years. But like the others said, things were probably a little off before the flare during that pregnancy.

 

[Lily]

My POTS sneaked up on me gradually.  I do not remember having symptoms in my 20's, but I did by my late 30's.  I got a diagnosis of NCS in 2010 and POTS in 2014.