Bigskyfam Posted September 26, 2016 Report Share Posted September 26, 2016 Greetings to our newest DINET community members. My sincerest apologies if I've missed anyone! jadgr Jan52 Marcia Gatarn im4god2010 hwilson328 Ccrew stephanie.m Andante Ish Paul ItsaBeautifulDay Stefania DarkLavender JoRo blair1026 Sarah D lucy(lu) Sewingwithspoons missy Although I've only been here for two years, I've learned a lot, not only about my condition but of the determination, caring and knowledgable nature of this community. Support beyond belief! This forum serves folks from around the world in different time zones. It's great knowing I'm not the only one awake when my family is sleeping and I can't. I'm sure by evening you will see quite a few comments under this post with people saying hello. In the meantime if you have any questions let us know. Visit our DINET page and Facebook page as well. Bigskyfam Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted September 26, 2016 Report Share Posted September 26, 2016 Lots of new members! Welcome! Quote Link to comment Share on other sites More sharing options...
corina Posted September 27, 2016 Report Share Posted September 27, 2016 Welcome everyone!!! Quote Link to comment Share on other sites More sharing options...
Roxy Posted September 28, 2016 Report Share Posted September 28, 2016 Welcome everyone, since I joined, I have found the people here to be caring, funny, knowledgable, non-judgemental, and just all around great human beings. Glad you joined, see you on the forum Quote Link to comment Share on other sites More sharing options...
Katybug Posted September 28, 2016 Report Share Posted September 28, 2016 Welcome to our community! So glad you found us! Quote Link to comment Share on other sites More sharing options...
SarahA33 Posted September 28, 2016 Report Share Posted September 28, 2016 Great to see that you've all joined our community! Welcome 10 hours ago, Roxy said: Welcome everyone, since I joined, I have found the people here to be caring, funny, knowledgable, non-judgemental, and just all around great human beings. Glad you joined, see you on the forum Roxy - Thank you for sharing your experiences with DINET, it's so nice to hear your feedback! Quote Link to comment Share on other sites More sharing options...
Rgaff Posted September 29, 2016 Report Share Posted September 29, 2016 I too am a new member since Sept 21 although not listed above. Totally fine, apology accepted ! I was diagnosed with POTS last year, July 2015. I am developing new symptoms and had no idea that they might even have been related. Thought I was going mad to be honest. Since April this year, I can't seem to eat without having severe bloating. The fatigue is awful at the moment. I am 47 years old and feel like I'm 90. This morning, I walked to the kitchen and made something to eat and I feel exhausted. I do have a question for you all. I checked my heart rate and it seemed totally fine. It was actually 78 when sitting. My resting hr has been 125 and varies . Tilt Table test last year confirmed diagnosis when it shot to 152. My question is this: Even when the monitor shows a relatively low hr, do any of you feel exhausted? I feel like a complete hypochondriac lately. No one can see it as I'm told all the time "But you look great"... so I isolate. I feel like I'm digging deep for air, like I'm not getting enough. Really trying to learn as much as possible about my condition as I have discovered that just because you are a doctor does not mean you are a good doctor ! Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted September 30, 2016 Report Share Posted September 30, 2016 Welcome Rgaff! I do completely understand what you mean about being 47 and feeling 90. Many of us do! Yes I did continue to experience disabling symptoms even after my bp and hr stabilized (due to meds). Air hunger is a common symptom. Hope you are able to find treatments that work for you and you feel better soon. Most people do improve with time. BTW I think your display name did not get listed b/c you changed it after you logged in. Quote Link to comment Share on other sites More sharing options...
Jessica Posted October 5, 2016 Report Share Posted October 5, 2016 On 9/29/2016 at 0:06 PM, Rgaff said: I have discovered that just because you are a doctor does not mean you are a good doctor ! Preach it, Rgaff!!!! I totally agree :-) Quote Link to comment Share on other sites More sharing options...
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