Ccrew Posted September 25, 2016 Report Share Posted September 25, 2016 My symptoms come in episodes and I'm scheduled to see a new dr. in a couple of weeks. Do you have to be having symptoms while testing is taking place? I'm worried that my testing is all going to come back negative bc I'm not currently having symptoms. Can anyone answer this? Quote Link to comment Share on other sites More sharing options...
statesof Posted September 26, 2016 Report Share Posted September 26, 2016 As far as tilt table test related experiences; I've done two seperately and an ekg laying/ standing, and all three of the times it showed I had POTS and I felt symptom-wise differently on each different day. That being said I don't think you can know for sure ahead of time how your symptoms will be expressed on your test results, with other testing like mri's and hr monitoring I may have felt terrible and the tests came out as normal. Quote Link to comment Share on other sites More sharing options...
Ccrew Posted September 26, 2016 Author Report Share Posted September 26, 2016 Ok thank you for the reply Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted September 26, 2016 Report Share Posted September 26, 2016 Welcome to the forum. Are you having a tilt table test? My experience is similar to statesof's. That said, I think it is plausible that we POTS patients don't exhibit the changes in hr every hour of every day, or even every day, necessarily. I know my hr on standing is higher in the AM and becomes more normalized as the day progresses. Also, I do have days when I definitely have more pronounced heart rate differences. What may be helpful is to supplement a tilt table test with heart rate data you collect at home on a few occasions (sitting and standing) when you are feeling poorly. Quote Link to comment Share on other sites More sharing options...
Ccrew Posted September 26, 2016 Author Report Share Posted September 26, 2016 Ok thank you! I will start logging my data Quote Link to comment Share on other sites More sharing options...
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