Son starting florinef

[Red246]

Hello all!  Little bit of history, my daughter is 26 and was diagnosed with POTS at age 16. She takes florinef 2x daily.  She still struggles but does have periods of doing well. 

My youngest, 18, was previously diagnosed with dysautonomia when he was younger.  He seemed to have outgrown it.  Fast forward to last year when he started having problems again - tachycardia, dizziness, breathing problems,  etc.....  He was not presenting as if it was POTS. Lots of doctors & tests and cardiologist has now put him on florinef.  

He's taking .1mg in the morning.  He's experiencing a marked increase in dizziness and chest pressure since starting the medication 4 days ago.  I don't remember my daughter having this problem.  Is there an "adjustment" period?  I know it can take up to several months to see full benefits.  TIA

[Katybug]

I think it's hard to say if this is from the med or not because we all experience medications and their side effects so differently. 

Florinef is used to build blood volume and therefore increase blood pressure by retaining salt and therefore fluid. This increase in BP is then, in theory, supposed to help slow the heart rate.

I'm a bit unclear from your post as to what the final diagnosis was that led to a florinef prescription. Was his BP low or low enough to suspect that this was contributing to his original symptoms? I started out with low BP but have been able to stabilize my BP for the most part. However, I do occasionally have low BP for a couple days but I also now occasionally have a higher BP (133/86) like I am having today. Interestingly,  I become symptomatic with the same symptoms when either of these things happen. I apparently have a sweet spot for my BP and when I go too high or low, it makes me ill.