Jump to content
Search In
  • More options...
Find results that contain...
Find results in...
DizzyGirls

Dystonia - Anyone?

Recommended Posts

Has anyone developed dystonia rather suddenly?  Or at all?  Daughter is still suffering and tendons are pulling so tight it's just moving her bones around. It gets worse in the evening, but tendons are staying tight all the time.

Share this post


Link to post
Share on other sites

Sorry to hear your daughter is having such a difficult time. 

I taught a girl who had neck dystonia her muscles were so tight her neck was held to one side all the time. She was treated with Botox and wore a body brace which did improve it and relieved some of the discomfort, if I remember correctly she had injections about every six months

hope you can find some answers

Share this post


Link to post
Share on other sites

Thanks Katybug and dancer 65!  I'll definitely read the link, tons of information!  The botox, too.  I have ready that quite a few people have success with that.  I'll give everybody an update after we go to Stanford the early part of this week.  Just trying to maintain until we go.  The two things that she has noticed in all this is that fatigue and adrenaline affect it.  So, we'll see....

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


×
×
  • Create New...