joshrandall Posted June 1, 2016 Report Share Posted June 1, 2016 i think i may have it a diagnosis is hard to obtain cant stop worrying about it, last night i slept for nearly a day and i still feel tired now ontop of that my heart was beating really slow and forceful has knocked me sick, no help from doctors Quote Link to comment Share on other sites More sharing options...
joshrandall Posted June 1, 2016 Author Report Share Posted June 1, 2016 i also feel really tired even thought ive slept nearly 20 hours Quote Link to comment Share on other sites More sharing options...
joshrandall Posted June 2, 2016 Author Report Share Posted June 2, 2016 So i can take my pulse and feel my vein spasm in my wrist? seriously that is scary because i dont feel my pulse when it happens. Quote Link to comment Share on other sites More sharing options...
Katybug Posted June 2, 2016 Report Share Posted June 2, 2016 Sorry, Josh. I'm not familiar with angina. Quote Link to comment Share on other sites More sharing options...
joshrandall Posted June 2, 2016 Author Report Share Posted June 2, 2016 hey, yes, im getting no help from any doctors and im quite scared nobody takes my condition seriously in my house or doctors and im constantly worried something is going to happen, i get alot of chest pain and literally feel spasms, from muscles and vains when im taking my pulse :/ Quote Link to comment Share on other sites More sharing options...
AngieP Posted June 2, 2016 Report Share Posted June 2, 2016 Hi Josh, I can relate to living with terrible chest pain. It is extremely frightening. Even though I've been told by my cardiologist that my chest pain is not life threatening it is always scary when it occurs. I also experience fatigue after a bad episode. I'm afraid I don't have much advice for you, except don't push yourself. Listen to your body and rest when you need to. Hope you start to feel better soon. Angie Quote Link to comment Share on other sites More sharing options...
statesof Posted June 2, 2016 Report Share Posted June 2, 2016 Hey Josh, I went through all the typical heart tests (ekg, stress test, holter monitor, bubble test) and I was seeing my cardiologist for chest pressure/ tightness and just a very uncomfortable bloated feeling, or sometimes it felt like I was carrying a weight on my chest. My cardiologist believed it was somehow related to my POTS, after most my tests were normal, and didn't seem too interested in finding out if it was some sort of microvascular angina. Quote Link to comment Share on other sites More sharing options...
joshrandall Posted June 3, 2016 Author Report Share Posted June 3, 2016 i get quite alot of spasms though and alot of chest pain i can be taking my pulse and feel my main vain spasm up. or well twitch at least? Quote Link to comment Share on other sites More sharing options...
issie Posted June 9, 2016 Report Share Posted June 9, 2016 Another thing that I have and is connected to MCAS and my POTS is Kounis Syndrome. For sure uncomfortable and scares you when it acts up. Issie Quote Link to comment Share on other sites More sharing options...
andybonse Posted June 22, 2016 Report Share Posted June 22, 2016 Doesnt sound like angina and the vein spasm is probably a tendon or muscle spasm as its probably not possible to feel a vessel contract or dilate!! always check with your doc tho a lot of our hearts go slow and in a lot of cases is normal, always get checked. angina related to the heart which I get when upright in heat and not on florinef radiates down the arm, gets worse with exertion and mine resolves by lying down to restore blood flow! feel better soon! Quote Link to comment Share on other sites More sharing options...
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