joshrandall Posted May 26, 2016 Report Share Posted May 26, 2016 I know pots by its self and dysautonomia isnt life threatening, but, what about if its caused by an allergic reaction to a particularly powerful med, that didnt resolve itself? Quote Link to comment Share on other sites More sharing options...
corina Posted May 28, 2016 Report Share Posted May 28, 2016 Mm I actually wouldn't know, maybe ask our doctors in our next newsletter? There will be a topic when we need new questions! Quote Link to comment Share on other sites More sharing options...
statesof Posted May 28, 2016 Report Share Posted May 28, 2016 Did you doctor's believe your POTS to be caused by an allergic reaction? Quote Link to comment Share on other sites More sharing options...
joshrandall Posted May 28, 2016 Author Report Share Posted May 28, 2016 The doctors i dealt with, told me i didnt have pots without doing a tilt table test, or active stand test, and said that i had anxiety, because i wasnt blacking out it wasnt pots, the lack of awareness from supposed top cardiologists is staggering. Quote Link to comment Share on other sites More sharing options...
statesof Posted May 29, 2016 Report Share Posted May 29, 2016 Here is our physicians list of knowledgable POTS doctors, it may be worth taking a look at and seeing if there is one in your area, they may be able to run a TTT for you: http://dinet.org/index.php/physician-list Quote Link to comment Share on other sites More sharing options...
issie Posted June 12, 2016 Report Share Posted June 12, 2016 What med? May can give us a better idea why you feel the med caused it. Issie Quote Link to comment Share on other sites More sharing options...
joshrandall Posted June 12, 2016 Author Report Share Posted June 12, 2016 Simvastatin Quote Link to comment Share on other sites More sharing options...
issie Posted June 12, 2016 Report Share Posted June 12, 2016 What I know from observance of several older ones who were on statins - One man, went bed bound. Couldn't walk, seemed he had dementia. He had issues with his heart. He got off them and lived for many years. We didn't think he would come out of the hospital. My father-in-law had a very similar experience. He couldn't find his way to his bedroom. Could barely rise from sitting. Was very weak in his legs. He got so much better off them. He does however also have lasting dementia. But that too is better. He was very lethargic and now is much more active. I think they both had dementia before the statins, but the statins made them worse and they both had horrible leg weakness. It's encouraging to note, they both got better, in time, off the med. It is thought that too much sugar in the diet can cause elevated chlosterol and high triglycerides. That can even be too much fruit. My hubby figured out our morning smoothies, with mostly whole fruits, was his culprit. Issie Quote Link to comment Share on other sites More sharing options...
joshrandall Posted June 12, 2016 Author Report Share Posted June 12, 2016 I only took one though. I do feel ive got better but it seems alot of the side effects people get from months of use I got after just one, so Im guessing I had a severe intolerance. Quote Link to comment Share on other sites More sharing options...
issie Posted June 12, 2016 Report Share Posted June 12, 2016 At least you figured it out sooner rather than later. Hopefully, time will help. Have you looked into MCAS? Issie Quote Link to comment Share on other sites More sharing options...
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