lattegirl Posted May 7, 2016 Report Share Posted May 7, 2016 Hi, new to this.I have vasovagel presyncope , I still have sudden events and can't explain a trigger.Wondered if a bp diary would help and when is the best times to monitor- am as I wake up flat or sitting or standing and evening laying down or sitting etc . Advice would be great .Thanks Quote Link to comment Share on other sites More sharing options...
Kaitlyn Posted May 7, 2016 Report Share Posted May 7, 2016 Hi Latte girl I have POTS w severe vasodepression, neuro cardiogenic syncope, low blood pressure (OH-Orthostatic Hypotension) - all stuff that makes you dizzy and presyncopal or syncopal. what I did is created a BP log on the computer with the date, time, BP, HR and a line to indicate seated, standing, lying down or any other notes for example 'started xyz new med'. Then I started checking randomly and also when I felt symptomatic. When I see my dr I bring this log with me and it can provide good information for them. It's important to have an accurate monitor and do the readings correctly. You may even want to bring your BP cuff to the dr with you to check it against theirs. Also, don't check your BP lying on your side - it will give a lower reading. If you are in bed you have to be laying flat on your back. Good luck ! ? Quote Link to comment Share on other sites More sharing options...
lattegirl Posted May 8, 2016 Author Report Share Posted May 8, 2016 Hi Kaitlyn, Thanks for the info really helpful, I will give it a go ? Quote Link to comment Share on other sites More sharing options...
Kaitlyn Posted May 8, 2016 Report Share Posted May 8, 2016 Great! Let me know how it works out for you ? Quote Link to comment Share on other sites More sharing options...
Guest ANCY Posted May 8, 2016 Report Share Posted May 8, 2016 I use a bp diary app on my phone. I record at least 3 x a day and my cardiologist finds this information very helpful. He likes to know what is going on other than the 1 minute when they take bp in his office. I can record bp, heart rate, time, location of reading, posture, and a note with any pertinent information. Quote Link to comment Share on other sites More sharing options...
lattegirl Posted May 10, 2016 Author Report Share Posted May 10, 2016 That sounds great , on what site will I find this app ? Thanks Quote Link to comment Share on other sites More sharing options...
yogini Posted May 10, 2016 Report Share Posted May 10, 2016 Yes, I wrote mine in a notebook 3x/day. Morning after lunch and evening. Write down the BP and the time. If you do it for month or 2, you will see a pattern. Make sure you have an accurate BP monitor and that you read the instructions - have to be still etc otherwise BP gets screwed up. Quote Link to comment Share on other sites More sharing options...
lattegirl Posted May 10, 2016 Author Report Share Posted May 10, 2016 ok thanks for the tips will try this out before I see the consultant. Quote Link to comment Share on other sites More sharing options...
Guest ANCY Posted May 10, 2016 Report Share Posted May 10, 2016 I got mine off of play store. There were several to choose from with different features. Quote Link to comment Share on other sites More sharing options...
lattegirl Posted May 10, 2016 Author Report Share Posted May 10, 2016 Great, thanks will have a look. Quote Link to comment Share on other sites More sharing options...
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