New Here, POTS and Genetics

[LisaP63]

LisaP63

Happy Spring! I'm kind of new here... I've appreciated the site info for a couple of years but recently realized I was missing out not using the forum!  Both of my kids have POTS, and I am currently being evaluated for it myself.  Daughter Tay, age 23 was diagnosed in 2010 at age 17 (still struggling but will graduate from college in June!). Son W., age 18 was diagnosed in 2011 at age 12 (housebound). I've struggled mightily with progressively worsening chronic migraines since age 12 but recently experienced some major relief with Botox for Migraine. Once I could breath between headaches, I realized something else was going on. I think I've been attributing a lot of symptoms/health issues to migraines when they may be more POTS (or similar)- related. I wound up at my kids' specialist in Feb, got a couple of liters of IV fluids then started on Fludrocort and  supplements. My orthostatic tests were borderline, so we're starting with conservative treatment (don't want to assume it's exactly like my kids).

I wanted to introduce myself and also ask if anyone here has two or more in the family with POTS/similar. Clearly there's a genetic factor (our doc has quite a handful of sibs with POTS), but wondering what the experience is here and hoping to share info. Thanks everyone!

[MomtoGiuliana]

Welcome to the forum.  One of my sisters and I are both diagnosed w POTS.  My symptoms have been far more severe, overall.

[Katybug]

I have POTS. My maternal grandmother and my mother weren't /aren't diagnosed but have similar health issues. My grandmother used to have "spells" where she would feel faint and sweat profusely,  sometimes have GI issues related to these episodes. They also had/have many EDS characteristics although neither have that dx either. They also had autoimmune thyroid issues, grandmother had Grave's and Mom and older sister have Hashimoto's.