shathaway0811 Posted March 28, 2016 Report Share Posted March 28, 2016 So while driving my car today, my fingers randomly got super wrinkly. My hands were not sweaty and had not been in any water... It was quite interesting. I didn't think much of it but out of curiosity looked it up to see what causes wrinkled/pruny fingers aside from water, and much to my surprise, parasympathetic nervous system issues (i.e. autonomic nervous system issues) can be a cause for this! Has anyone else experienced this phenomenon that they've noticed outside of water? I'm curious to know! Human bodies are weird. Lol. Quote Link to comment Share on other sites More sharing options...
angelloz Posted March 28, 2016 Report Share Posted March 28, 2016 Yes, yes, and yes! I discovered this several years ago. I also have realized that when my fingers are really wrinkled I usually feel much worse. I have wondered if it stems from my low blood volume. Just thoughts. Wish doctors could sit down with our forum members and listen to all the things many of us have in common. Might be some clues in there somewhere. :). Quote Link to comment Share on other sites More sharing options...
shathaway0811 Posted March 29, 2016 Author Report Share Posted March 29, 2016 Angelloz, Yes!!! I felt like CRAP yesterday. Lots of GI symptoms and fast heart beat all day. Interesting. And yeah I really hope physicians start to be able to look at this disorder in a big-picture way... Some do but it's hard to find them! Sarah Quote Link to comment Share on other sites More sharing options...
JoelleDrops Posted February 28, 2018 Report Share Posted February 28, 2018 I notice last Summer that this would happen to me, but I couldn't figure out why. Last summer my symptoms were intense, to say the least. Today, was unseasonably warm where I live, but I relatively symptom free. I noticed, however, my heart rate rate was slightly elevated, nothing extreme resting was around 115bpm. I noticed my hands were wrinkled today around noon, at this point I had eaten and had about 90 oz of water and 20 oz of cokecola (my guilty pleasure). So I wasnt dehydrated. This evening though my kids were playing outside with the neighbor kids. I'm out there watching them with another neighborhood father. I was walking when BOOM vertigo and I fell over, despite having my cane with me for balance. The neighbor had to walk me home. It was pretty embarrassing. This started my query into pruney finger tips and dysautonomia symptoms, which led me here. Thank you for your post and linking the two. Joelle Quote Link to comment Share on other sites More sharing options...
Lainy Posted March 1, 2018 Report Share Posted March 1, 2018 I'll have to pay attention and see if this coincides with bad days. I noticed it first a couple months ago and just figured it was due to recent weight loss but it keeps happening - even after gaining back what I lost. I thought it was the craziest thing and my family just counted it up as "me being weird" again. Funny to know how many of those weird things are actually tied to dysautonomia and POTS now that I actually have a diagnosis. Quote Link to comment Share on other sites More sharing options...
Annelle Posted November 8, 2019 Report Share Posted November 8, 2019 I have been unwell for 2 years and diagnosed with under active thyroid... taken Levothyroxine since June but still have nasty symptoms. Now I notice wrinkly fingertips that dent when pressed.. at my wits end as to know what’s wrong with me... Quote Link to comment Share on other sites More sharing options...
mojojojo777 Posted July 22, 2020 Report Share Posted July 22, 2020 woah I've been looking for answers all day then came across this! I've always suspected I had dysautonomia as a result of heavy mdma abuse 5 years ago, and sometimes I'm fine but when I have days of panic attacks, anxiety and insomnia I have pruney hands too!! Quote Link to comment Share on other sites More sharing options...
stv Posted September 22, 2020 Report Share Posted September 22, 2020 Same here, for many years, to me it happens after eating and lasts around one hour. It gets worse when I enter insomnia and muscle exahustion phases. I went to LOTS of doctors, neurologists, internists, cardiologists... everyone and noone knew, they had never seen it. AMAZING. Quote Link to comment Share on other sites More sharing options...
JXCraig Posted October 26, 2020 Report Share Posted October 26, 2020 I am not alone! I have been trying to find information on this for a long time now maybe about two years has anyone found out any detailed info on this I drive a lot for a living and one day I noticed it after driving and I wondered if it was the weather because it was rainy and sticky out but I kept an eye on it from there on and it hasn't gone away since please anymore information would be great Quote Link to comment Share on other sites More sharing options...
Muon Posted October 26, 2020 Report Share Posted October 26, 2020 I had episodes of these, though they are rare. No idea if this had anything to do with dysautonomia related symptoms or any of my other complaints. Quote Link to comment Share on other sites More sharing options...
CarolS Posted November 22, 2020 Report Share Posted November 22, 2020 My daughter who has ME and POTS has had excessive finger wrinkling in water (only needs to be in water for a few seconds) and sometimes without water. She's had this issue for much longer than she's had POTS or ME in a significant way. It's the one symptom that I tend to avoid talking to doctors about as it sounds crazy! The other day I came across this big thread on it on Phoenix Rising. Pretty interesting-- https://forums.phoenixrising.me/threads/the-finger-wrinkling-test-can-be-used-as-a-screening-test-before-tilt-table-testing.77607/ Quote Link to comment Share on other sites More sharing options...
CarolS Posted November 22, 2020 Report Share Posted November 22, 2020 Also, I wonder if any of you who have the wrinkling issue also suffer from cold hands? Quote Link to comment Share on other sites More sharing options...
Pistol Posted November 22, 2020 Report Share Posted November 22, 2020 @CarolS - this is very good info. thanks! Although the article does not explain WHY this happens it does say that finger wrinkling is a sign of POTS. Very useful info! Quote Link to comment Share on other sites More sharing options...
CarolS Posted November 22, 2020 Report Share Posted November 22, 2020 @pistol From what I can understand from the thread, it seems that some people have a total lack of wrinkling no matter how long their fingers are immersed and that's a sign of small fibre/autonomic neuropathy, where the excessive wrinkling may be a sign of excessive sympathetic activation. And then some people on the thread have wrinkled fingertips all the time--wet or dry--and perhaps that's a sign of hypovolemia or destruction of collagen in something like EDS. My experience is that doctors look at me like I'm crazy when I've mentioned it regarding my daughter, but it seems like fingertips have many stories to tell! Quote Link to comment Share on other sites More sharing options...
stv Posted December 2, 2020 Report Share Posted December 2, 2020 I have had this symptom for around 10 years and it still scares me as if it was terminal digestive cancer because it keeps happening on and off but always after eating, specially greasy food, but not even always, which makes me crazy. I have it right now. It happens after 5 minutes eating and lasts around 30. I also have lots of digestive cancer symptoms, specially the squared or flat feces, which is totally scary because it is very typical colon or rectum cancer, but I don't dare to take the colonoscopy, I am too afraid and even if they said I have no cancer I will fear it. I also have chronic diarrhea, usually right after eating something greasy, huge hemorroids, malaise after eating, etc. It's been many years like this and doctors say that cancer is faster, but I know it is there. Everyone who developed cancer had the symptoms years before. So... it is terrifying all of this. Has anybody ever known a doctor who knows the wrinkled hands reason which might make sense? Quote Link to comment Share on other sites More sharing options...
theaps Posted February 14, 2021 Report Share Posted February 14, 2021 On 12/2/2020 at 10:28 AM, stv said: I have had this symptom for around 10 years and it still scares me as if it was terminal digestive cancer because it keeps happening on and off but always after eating, specially greasy food, but not even always, which makes me crazy. I have it right now. It happens after 5 minutes eating and lasts around 30. I also have lots of digestive cancer symptoms, specially the squared or flat feces, which is totally scary because it is very typical colon or rectum cancer, but I don't dare to take the colonoscopy, I am too afraid and even if they said I have no cancer I will fear it. I also have chronic diarrhea, usually right after eating something greasy, huge hemorroids, malaise after eating, etc. It's been many years like this and doctors say that cancer is faster, but I know it is there. Everyone who developed cancer had the symptoms years before. So... it is terrifying all of this. Has anybody ever known a doctor who knows the wrinkled hands reason which might make sense? Get tested for cancer—and if it makes you feel more comfortable—there are studies that suggest fasting (only water with electrolytes) for one week before chemo, causes your cells to CREATE A PROTECTIVE LAYER AROUND THEM while in a state called autophagy—which is a process your body goes through to remove damage and debris. Only healthy cells can do this. The cancer cells cannot. So if you take chemo after doing this, it does far less damage to your body and seems to target the cancer cells better. Hope one possibly strategy gives you comfort. Now go get some answers and take control of whatever situation you're in. Good luck! Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted February 15, 2021 Report Share Posted February 15, 2021 On 12/2/2020 at 1:28 PM, stv said: I have had this symptom for around 10 years and it still scares me as if it was terminal digestive cancer My guess is if you've had symptoms for 10 years and they have not worsened it's not cancer. However, you absolutely need to have these symptoms investigated. I was diagnosed with colon cancer in December. No symptoms. It was found on a routine colonoscopy. I am feeling extremely fortunate it was found at an early stage when still treatable. Quote Link to comment Share on other sites More sharing options...
Erin R Posted April 12, 2023 Report Share Posted April 12, 2023 I just noticed that I was getting wrinkling in my fingers tonight. I was recently diagnosed with POTS. I didn’t even know this was a symptom of POTS. I was just looking up because I thought it was weird. I might be connected. Good to know I’m not alone and having this strange symptom. Quote Link to comment Share on other sites More sharing options...
Tosha Blackburn Posted May 3, 2023 Report Share Posted May 3, 2023 recently diagnosed with PoTS through a tilt table test - as well, & I have the wrinkly fingers as well. The inability to regulate my body is the most frustrating for me. Quote Link to comment Share on other sites More sharing options...
Sarah Tee Posted May 11, 2023 Report Share Posted May 11, 2023 @Tosha Blackburn, welcome to the forum. Sorry to hear you have POTS, but glad to hear you have been diagnosed. I hope you can make some progress treating and managing your symptoms now you have that information. This forum is a great resource. Feel free to ask questions or talk about your frustrations. Quote Link to comment Share on other sites More sharing options...
saramichelle Posted May 18, 2023 Report Share Posted May 18, 2023 I have had (undiagnosed until 3 weeks ago!) HyperPOTS for decades. I never put together the the wrinkly finger/toe thing might be related; I just assumed I wasn’t moisturizing my skin frequently enough. I also have Raynaud’s Syndrome, so my digits are usually cold if I’m not in the absolute perfect situation. I don’t know if that also contributes to the wrinkling. Quote Link to comment Share on other sites More sharing options...
Pistol Posted May 19, 2023 Report Share Posted May 19, 2023 @saramichelle welcome to the forum! I too have hPOTS and Raynauds syndrome! I am sorry you have to live with this diagnosis, but please know that there is treatment out there, if you find a doc who will prescribe! I hope you have kind and educated physicians! Quote Link to comment Share on other sites More sharing options...
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