db2504 Posted March 25, 2016 Report Share Posted March 25, 2016 Hi everyone, Hope you are feeling okay. I was wondering is anyone having a really hard time with their symptoms right now? I was wondering if it could be the change in seasons. My daughter is really suffering especially with body pain and very frequent adrenaline rushes. Does anyone have severe muscle pain and if so what do you take to help with the pain. Tylenol is not cutting it. Quote Link to comment Share on other sites More sharing options...
Katybug Posted March 25, 2016 Report Share Posted March 25, 2016 I have been in extra bad shape since the weather started warming up (I think I'm the only one that was happy for the few cold days last week). This is a typical pattern for me every year. The warmer weather patterns and I don't get along. Quote Link to comment Share on other sites More sharing options...
DizzyGirls Posted March 25, 2016 Report Share Posted March 25, 2016 Katybug, You weren't the only one that likes the cooler days! My 19-year-old loves warm weather, she just feels really lousy in it! It was warm and dry here in the SF area about 2 weeks ago, just really beautiful weather, but she felt just awful. She likes it about 65, cloudy and humid. Don't know why, but she just feels better. db2504, My daughter doesn't get the adrenaline rushes, but her head feels like it is going to split in two. In fact, it has been getting so bad, that her neuro just put her on some amitryptiline to see if that will help. Her heart rate will fluctuate more and she battles vertigo also, so this gets even more severe in the spring when it is warm and dry. We have been getting significant amounts of rain lately, so it has also been helping with a horrible pollen count. Do the spring pollens bother your daughter? Any weather change and especially season changes (spring and fall are the worst) are really debilitating for her. Also, can she take motrin in the higher doses? It might help. Next step would be prescription meds. I know my daughter can't take Motrin anymore because of the Florinef. Hope your daughter feels better soon! Quote Link to comment Share on other sites More sharing options...
Amalia01 Posted March 25, 2016 Report Share Posted March 25, 2016 I agree, this time of the year is hard for me too. I just recently started amitriptyline to prevent migraines. I have also been told that I am experiencing cluster headaches as well. Quote Link to comment Share on other sites More sharing options...
mwise Posted March 25, 2016 Report Share Posted March 25, 2016 I feel best when the weather gradually goes up and stays between 68 to 70 degrees. Also a full moon doesn't help either. I live in NEO and right now our weather goes from cold to hot every few days which is causing my blood pressure to stay low causing me to want to faint unless I am sitting or laying down. The only thing that helps is I put air on and do a lot of sitting and laying down. The cool air helps. Quote Link to comment Share on other sites More sharing options...
db2504 Posted March 26, 2016 Author Report Share Posted March 26, 2016 Thank you very much for your replies and concern. My daughter does not seem to be struggling with the pollen. She actually hasnt tried Motrin, so we will give it a try. She doesnt really tolerate meds very well which is making it very hard to get any relief. She also has a swollen lymph node in her armpit. She will be getting an ultrasound for this, but we are thinking it could be part of the POTS. Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted March 30, 2016 Report Share Posted March 30, 2016 My symptoms cone and go in a seasonal cycle Quote Link to comment Share on other sites More sharing options...
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