db2504 Posted March 15, 2016 Report Share Posted March 15, 2016 Is there anyone that experiences nightly adrenaline rushes and swelling and redness of their extremities? Computer work and thinking seem to make it worse. Help!!! Any suggestions would be appreciated. Quote Link to comment Share on other sites More sharing options...
Bigskyfam Posted March 15, 2016 Report Share Posted March 15, 2016 I get swelling, redness and warmth in my feet and or hands at random times sometimes just one side. I'm not on meds. If it's my feet I elevate them. Usually it lasts 20-3O min. No explanation has been given :/ sorry. I hope others can chime in! Quote Link to comment Share on other sites More sharing options...
Katybug Posted March 15, 2016 Report Share Posted March 15, 2016 I have it in my face and hands and knees. I believe mine to be associated with my mcas but I don't know what triggers it. But, it is like a nightly friend that visits between 7-9 every evening. I also become wide awake and highly productive around the time it starts but then I can't fall asleep until between 2-4 am regularly. Quote Link to comment Share on other sites More sharing options...
angelloz Posted March 15, 2016 Report Share Posted March 15, 2016 I have just recently noticed swelling on my right hand , redness in both. I have had the redness with feelings of heat but the swelling is new. Quote Link to comment Share on other sites More sharing options...
TCP Posted March 15, 2016 Report Share Posted March 15, 2016 I get red blood pooling in hands, legs, feet, boobs, upper arms. It makes the neuropathic pain much worse. Quote Link to comment Share on other sites More sharing options...
db2504 Posted March 16, 2016 Author Report Share Posted March 16, 2016 Thank you all for your replies. Is there anything medicine way that helps and does it accompany adrenaline rushes. Quote Link to comment Share on other sites More sharing options...
SarahA33 Posted March 19, 2016 Report Share Posted March 19, 2016 Hi DB, propranolol has helped, also so has Ativan because it lessons adrenaline. However, for me, anything that alters my serotonin (which is another neurotransmitter) also causes intense flushing. https://en.wikipedia.org/wiki/Serotonin Quote Link to comment Share on other sites More sharing options...
yogini Posted March 21, 2016 Report Share Posted March 21, 2016 When I was first sick, there were many nights when I woke up with my heart beating too fast. It still happens to me occasionally. Like the other person above, for me the swelling happened when standing for too long, due to pooling. For many of us lying down helps reduce the swelling, so it is interesting that you have the opposite reaction. It might also be helpful to measure your HR and BP when these incidents happen so you have more information to give your doctor. I will say that for me what has been most helpful is addressing my POTS as a whole, rather than focusing on specific symptoms. My night sweats and all other POTS symptoms were reduced greatly when I found the right med combo for myself. Quote Link to comment Share on other sites More sharing options...
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