shathaway0811 Posted February 18, 2016 Report Share Posted February 18, 2016 Also, does anyone know of any physicians who are well-respected and have experience as/are specialists in dysautonomia in SC? My symptoms are getting progressively worse, and everyone is looking at everything as a separate entity and I'm pretty sure that's why every treatment plan I've had given to me (mostly over-the-counter medications) do nothing. I'm also tired of people telling me it's just anxiety. When you look at the list of symptoms on this site, or on POTS UK (which has a great description of the disorder), I fit literally everything on it save for like 5 things. CLEARLY what I'm experiencing is interrelated in some respect, and I feel the only physicians who are willing to recognize these things as connected are those who know about dysautonomia extensively, which unfortunately are difficult to find... Thanks!Sarah Quote Link to comment Share on other sites More sharing options...
corina Posted February 18, 2016 Report Share Posted February 18, 2016 Hi Sarah, have you checke our Physician's list? Here's a link http://www.dinet.org/index.php/physician-list Quote Link to comment Share on other sites More sharing options...
shathaway0811 Posted February 18, 2016 Author Report Share Posted February 18, 2016 Yep, nothing on it. Quote Link to comment Share on other sites More sharing options...
Katybug Posted February 18, 2016 Report Share Posted February 18, 2016 I have never heard of anyone mentioning a dysautonomia doc in SC. I pay attention to that because I used to live there, and would like to live there again one day.You might try calling the Duke and Clemson Neurology and Cardiology departments and asking if anyone is familiar with treating dysautonomia patients. Quote Link to comment Share on other sites More sharing options...
krystal Posted February 19, 2016 Report Share Posted February 19, 2016 Dr. Kenneth Bergmann & Dr. Vanessa Hinson Department of NeurologyMedical University of South Carolina96 Jonathan Lucas St., Suite 307Charleston, SC 29425843 792 3221 Quote Link to comment Share on other sites More sharing options...
shathaway0811 Posted February 19, 2016 Author Report Share Posted February 19, 2016 Thank you so much!!! Quote Link to comment Share on other sites More sharing options...
Guest KiminOrlando Posted April 8, 2016 Report Share Posted April 8, 2016 Dr. James Glenn at the Medical University of South Carolina only does dysautonomia. He is a cardiologist and he is fabulous! I travel from Florida to see him and have for years. He is very hands on and spends time listening to you. He is in the Ashley River Tower building. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.