Kris4444 Posted February 13, 2016 Report Share Posted February 13, 2016 My ANS tests results were abnormal. Still waiting on a definite diagnosis of Hyper Pots but the doctor said we can email back and forth if I have questions. I sent him 15 questions LOL. He will probably hate me.One of my questions was do I need a cardiologist? I had an abnormal deep breathing test with values well below the norm, I have orthostatic tachycardia and failed the TTT, Valsalva and handgrip test. I also have high dopamine and NE.I do actually have a cardiologist that I've seen in the past but don't want to complicate things further by adding yet another doctor to the mix if it isn't necessary. I wondered what you guys do? Do you have a cardiologist that you see?Thanks. Quote Link to comment Share on other sites More sharing options...
corina Posted February 14, 2016 Report Share Posted February 14, 2016 Hi Kris, I do have a cardio but only consult him when specific heart related issues pop up (like an extreme low heartrate). Other than that my neuro is my main dys doctor. Hope this helps! Quote Link to comment Share on other sites More sharing options...
Kris4444 Posted February 14, 2016 Author Report Share Posted February 14, 2016 It does. Thank you. Quote Link to comment Share on other sites More sharing options...
Guest ANCY Posted February 15, 2016 Report Share Posted February 15, 2016 My cardiologist and neurologist are of almost equal value to me. However it took going through several drs to get the care team I have now. My cardiologist manages my bp and hr meds for me while I bring all my other isues to neurologist. I have had, in the past, both cardiologists and neurologists who were very unhelpful so I think a lot has to do with thier familiarity with Dysautonomia. Quote Link to comment Share on other sites More sharing options...
Kris4444 Posted February 15, 2016 Author Report Share Posted February 15, 2016 Ok, good to know. I have a cardiologist that I've seen before for another issue. This neurologist is new to me and he gave me the bp meds so I guess I'll pose the question to him and see what he thinks is necessary. Thank you! Quote Link to comment Share on other sites More sharing options...
lewis Posted February 18, 2016 Report Share Posted February 18, 2016 I've seen 5 different cardiologists and the only one that was helpful was the one that knew about dysautonomia. I still use her as my primary contact when questions come up only because she is willing to help. I feel my autonomic neurologist is more knowledgeable but is less helpful due to being over loaded with patients. Quote Link to comment Share on other sites More sharing options...
Kris4444 Posted February 18, 2016 Author Report Share Posted February 18, 2016 I think all doctors these days are overloaded with patients. It's crazy. Booked 3 or more months out, not allowing follow up appointments after test results. Don't get me started. Quote Link to comment Share on other sites More sharing options...
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