shathaway0811 Posted January 6, 2016 Report Share Posted January 6, 2016 So for the first time in my life, they have FINALLY put me on a beta blocker. Because my blood pressure is so low all the time, I'm on 10mg of Propranolol twice a day, and I can feel a tremendous difference just within the first 48 hours that I've taken it. Things that generally make my heart rate shoot out the roof don't, and I don't feel out of breath constantly... In general I finally feel as normal as I've felt in a long time!! Thank goodness for finally finding a doctor who recognized and labeled the POTS/dysautonomia symptoms and was proactive about it. I hope some of you all have had the same results!! Best, Sarah Quote Link to comment Share on other sites More sharing options...
lewis Posted January 7, 2016 Report Share Posted January 7, 2016 Propranolol actually raised my blood pressure, just stabilized everything. I thought it felt like they put a muffler on my heart. I'll have to say that the affects of it were better when I first took it but if I miss a dose I can sure tell really quick. Glad it is helping you! Quote Link to comment Share on other sites More sharing options...
Katybug Posted January 7, 2016 Report Share Posted January 7, 2016 That's great, Sarah! Glad you found d so.ething that's working for you! Quote Link to comment Share on other sites More sharing options...
Debbie Rose Posted January 7, 2016 Report Share Posted January 7, 2016 Great News Sarah !!I have such horrible fatigue when I tried metoprolol years ago for palpitations and it only made it much much worse so had to stopGlad it worked for youDebbie Quote Link to comment Share on other sites More sharing options...
Evergreen Posted January 7, 2016 Report Share Posted January 7, 2016 Congratulations! It's wonderful you were able to find something that worked. It's so encouraging to hear positive stories like this. I hope you continue to improve! Quote Link to comment Share on other sites More sharing options...
shathaway0811 Posted January 7, 2016 Author Report Share Posted January 7, 2016 Thanks everyone!! I'm definitely really happy. No fatigue right now as I'm on a really low dose. If anything, I'm less fatigued as my heart isn't beating a million miles an hour all the time! That definitely takes it out of you lol. Quote Link to comment Share on other sites More sharing options...
artsystacey Posted January 25, 2016 Report Share Posted January 25, 2016 Yay, Sarah! That's how I started. On midrodrine & propranolol. It felt like I had let go of a 100lb weight I was dragging with me every day. I began to slowly exercise and now I'm weaned off the meds. Now, just light-moderate exercise, lots of water/salt, compression stockings, little to no alcohol or caffeine and not stressing too much in general helps keep me at least functional. Oh, and not getting my period helps, too. Quote Link to comment Share on other sites More sharing options...
shathaway0811 Posted January 25, 2016 Author Report Share Posted January 25, 2016 Thanks everybody. Unfortunately, the dose I'm on is now too low and my heart rate went back to being super fast farely quickly... So my physician has added Florinef as she thinks that I'm not retaining any sodium at all since I tend to drink constantly and therefore have to use the restroom constantly, as well. Hopefully the combo of Florinef and Propranolol helps. I'm having a lot of headaches and fatigue recently, for whatever reason... But I think they're exacerbated by my GI issues so hopefully once those get figured out everything else will, as well. It's crazy how much of these issues are like puzzle pieces that make no sense by themselves but are so dependent on one another. Quote Link to comment Share on other sites More sharing options...
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