joshrandall Posted January 6, 2016 Report Share Posted January 6, 2016 So im worried about a pain I feel not in my chest specifically my heart, it is a sort of bruising tender pain thats comes on for a second, like a ive had before but I havent had in a while only since I done ten push ups the other day first time id really exercised. Just kind of worried its kind of consistant its not ache i feel it happen brief a fair amount of times a day. It just worries me that its my heart not coping with the stress, and i have no one to talk to about this as doctors wont listen so forgive me for posting. Quote Link to comment Share on other sites More sharing options...
joshrandall Posted January 6, 2016 Author Report Share Posted January 6, 2016 im guesisng this is a spasm? kind of scary gosh, i feel so depressed of not having any support and these worries, i was having panic attacks about my heart and now i actually have issues, and its not panic, but real concern and fear now. Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted January 6, 2016 Report Share Posted January 6, 2016 Have you seen a cardiologist and had a thorough work up (echo, event monitor)? Chest pain is a symptom many POTS patients experience. Sometimes chest pain is not heart pain. However it's always good to mention any new symptoms to your doctor and I would urge you to contact your doctor. Peace of mind is also important for your well-being of course! Quote Link to comment Share on other sites More sharing options...
joshrandall Posted January 6, 2016 Author Report Share Posted January 6, 2016 hey yeh i had an event monitor, and echo and all was fine, but had a couple of episodes of this sort of pain, that didnt catch on monitor, my cardiologist then released me as they dont specialise in pots and didnt want to go to the trouble of reffering me. i do get muscle spasms, and when taking pulse i have felt on a number of occasions a vain spasm Quote Link to comment Share on other sites More sharing options...
bigtrouble Posted January 6, 2016 Report Share Posted January 6, 2016 Quite a lot of us with dysautonomia and also other types of issues like anxiety (a bunch of people here have anxiety. I myself had anxiety like symptoms without really feeling anxious) have chest pain. Some of it feels like it comes from the heart, or just below, sometimes above, sometimes under the arm, .....etc and even in the back.I suspect that dysautonomia can trigger anxiety like symptoms.You may have to accept the fact that you are going to have various nasty symptoms. I remember one guy or girl on a forum wrote that she had been to the ER 13 times. They had gotten used to seeing him/her.We even have a thread here about this. I asked what solution people have found. Nobody has one. Try going for a 30 min walk when it happens. Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted January 6, 2016 Report Share Posted January 6, 2016 hey yeh i had an event monitor, and echo and all was fine, I'm sorry the cardiologist didn't refer you to another specialist. This is not uncommon. Have you looked at the list of specialists here to see if someone is nearby who you could try to see?: http://www.dinet.org/index.php/physician-list Fortunately you've had some work up already which has at least ruled out many serious problems. Quote Link to comment Share on other sites More sharing options...
joshrandall Posted January 6, 2016 Author Report Share Posted January 6, 2016 thanks for your reply im in the uk and i see the one doc is treating autonomic failure? are these all private docs? Quote Link to comment Share on other sites More sharing options...
dancer65 Posted January 6, 2016 Report Share Posted January 6, 2016 Hi I am in the UK it can be really hard to get a referral. I have finally managed to get a referral to London college autonomic clinic but it has taken many visits to my GP. I think it is all to do with the cost! I too get pains in my chest really sharp stabbing a compiled by pins and needles which travels down my arm,all ECG were normal which has put my mind at ease however I when it happens it's unnerving I hope it is ok to say on here I joined STARS a syncope charity which have a help line, when I was frightened and desperate they were really supportive and constructive Quote Link to comment Share on other sites More sharing options...
joshrandall Posted January 6, 2016 Author Report Share Posted January 6, 2016 hey yes i have emailed stars and recieved no reply as of yet. hoping to hear back, yes it is all about money i have a pretty ignorant gp so i need to change him for sure! Quote Link to comment Share on other sites More sharing options...
lewis Posted January 7, 2016 Report Share Posted January 7, 2016 I get weird pains and things going on any time I do any type of chest excersize that last for days do I avoid them. Quote Link to comment Share on other sites More sharing options...
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