Jump to content

Constant Suffering - Samara Rose Ingraffia


Recommended Posts

From Rare Skin Condition

by Barcroft TV 5:51 minsA housebound woman feels like she is burning alive from the inside because of a rare genetic condition. Samara Rose Ingraffia suffers from erythromelalgia or Man on Fire syndrome, which leaves her feeling like she is experiencing constant second degree burns. Videographer / Director: Dustin Bacon Producer: Dan Howlett, Nick Johnson Editor: Sonia Estal


I don't know if I can post links here. If you do a search, I'm sure you will find stuff.

The video mentions that she also has Raynaud's syndrome.

Her skin look reddish and burned.

She keeps the room temp at 17 °C (65 °F). She always has fans on. She barely sleeps.

Link to comment
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Create New...