Faye Posted December 4, 2015 Report Share Posted December 4, 2015 I hope this is ok to ask. I was able to get my insurance to pay for a consult...and wondered if anyone has been to his office and what to expect. I don't have an apt till December 30th...so it's a bit out in time, but he was suggested on the list...If anyone has met with him or any words of advise to better prepare for my consult I would really appreciate it. As in I don't want to go in with every issue I have and waste time, but to make sure I can get things properly tested and on a road to having better days. Quote Link to comment Share on other sites More sharing options...
Psalm 23 Posted December 4, 2015 Report Share Posted December 4, 2015 Hi Faye,I attended a dysautonomia support group gathering a while back that Dr. Cannom opened up to forum members. I had an opportunity to listen to him speak and to meet him as well as a number of his patients. Dr. Cannom seemed knowledgeable. He was very warm and engaging and his patients seemed to love him. Many of the patients and other attendees I encountered at that support group had pots as well as a number of other issues. I already had a pots specialist at the time so I can't comment on Dr. Cannom from a patients perspective.Best of wishes to you on a productive appointment. Janet Quote Link to comment Share on other sites More sharing options...
Faye Posted December 4, 2015 Author Report Share Posted December 4, 2015 Thank you so much for your response! I am trying to be hopeful to find a Dr that can proper testing for POTS as well as being understanding and engaging....crossing my fingers. Quote Link to comment Share on other sites More sharing options...
sideofsalt Posted December 13, 2015 Report Share Posted December 13, 2015 Hi Faye, I have experience with Dr. Cannom and highly recommend him. He is the expert in his field (electrophysiology) and helped me a great deal with my POTS. He administered a battery of tests including TTT. I found him very easy to talk to. His medical and office staff were all excellent (at the time I saw him) and I got great support when needed. If I have any advice for seeing him (or any doctor), I would just be honest with him about all of your symptoms because with POTS, some seem unrelated. What also helped in my case was wearing a Holter monitor to track the tachycardia episodes. Best of luck at your appointment. Quote Link to comment Share on other sites More sharing options...
Faye Posted December 13, 2015 Author Report Share Posted December 13, 2015 I am so glad to hear that positive experience. I overall am doing much better than where i was two months back, however knowing someone will really look at my symptoms, and work with me to come up with a plan to have better days....is encouraging. I keep reading a common theme... Wax and Wayne....I call it my yo yo when friends ask.... It's like I am fully functional and then out of no where I am down for the count....I almost want/wish to display something at my appt....but I have documented my pressure and pulse to at least have some proof of the high heart rate and low pressure....it is sad sometimes because other dr start to point that it stress or anxiety and do not go past, or they think your heart rate is 'acceptable' range , but anyone who has felt th symptoms of POTS knows, there is nothing normal about feeling like your heart will jump out of your chest and things start to go dark when you stand or walk up a flight of stairs. Quote Link to comment Share on other sites More sharing options...
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