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Test Results Back! Anyone with similar results???


Lindz

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Hi everyone - my neuro sent me for testing. He is sending me to an autonomic neuro next. But here is what we have.

Deep breathing = Normal parasympathetic function

Vasalva = Normal sympathetic increase BUT paradoxical increase in parasympathetic function

Standing = Postural orthostatic tachycardia syndrome are indicated by decreased sympathetic response to standing and reflex tachychardia (blood pressure normal)

Sweat = Patchy decrease suggestive of small fiber axonal neuropathy

Impression: Paradoxical parasympathetic responses and excess adrenergic tone

Help! What does this mean?

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I would ask your doctor to go through the results with you, but it seems to say that you have POTS as stated in the "Postural orthostatic tachycardia syndrome are indicated by decreased sympathetic response to standing and reflex tachychardia".

Did you get to see how much of a jump there was in your heart rate during the test? I don't personally know how doctors test if you have hyper-POTS or not, but maybe another member might know

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"Postural orthostatic tachycardia syndrome are indicated by decreased sympathetic response to standing and reflex tachychardia"

This to me translates as when you were tilted up your sympathetic tone withdrew as a result reflex tachycardia initiated possibly due to vasodilation? Did they say if you had blood pooling?

The catecholamine testing is used to detect hyper pots.

Did they suggest any medication? Treatment methods?

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5 minutes standing.

I don't think I have hyper b/c nothing about pressure raises.. Now that Im reading the report, I see he mentions "Paradoxical parasympathetic response." I saw a good explanation for it - basically the two systems should be balancing itself out. Problems happen when one becomes more dominant. In my case, when the too dominant sympathetic system raises levels, the parasympathetic, instead of decreasing raises right along with it. So the treatment, whatever that is, is to grab both systems and lower them together to balance the see saw.

Thanks for responding. Can I ask, does his line about POTS make me official? Do I have it?

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Hyperadrenergic POTS can really only be diagnosed with by catecholamine blood testing. They need to pull blood and test your adrenaline / noradrenaline levels while lying down, then have you stand for 10 minutes, take more blood and test them again. If they are significantly high when standing (especially if they are lower while laying down) it may be HyperPOTS, despite what your other test results say.

This thread will probably help you, there's a lot of info there: http://forums.dinet.org/index.php?/topic/26969-how-is-hyperadrenergenic-pots-diagnosed/

Also, you might find this other thread interesting too. I've met a few people who had paradoxic parasympathetic syndrome: http://forums.dinet.org/index.php?/topic/25860-pps-not-pots/#entry241243

As far as whether the line about POTS makes it official, it depends. The major POTS researchers (and most autonomic specialists) consider the tilt table test the gold standard for diganosis; meaning, until you've had one, you haven't completely confirmed that you have POTS. Yet other doctors are perfectly happy to definitively diagnose POTS using just a stand test, without a tilt. However, not all docs you go to will accept that as definitive diagnostic criteria, whereas a tilt table test is pretty much universally accepted.

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  • 8 months later...

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