Wufflebear Posted November 6, 2015 Report Share Posted November 6, 2015 Happy Friday everyone!I have been noticing for some time that when my heart rate is higher.. 90+ resting or higher obviously standing up.. That I get really dizzy and confused. Some patterns I think make it worse. Squares seem to drive me nuts. Like in a mall or store with the square packages, tiling etc. (I have had this since I was in Jr. High). Is that part of being dysautonomic? Or is it a vertigo type thing?I got into a store the other day and got so dizzy and confused it took me a while to figure out how to get out.. Not fun. Does anyone else have issues with patterns or visual things messing with their head? Quote Link to comment Share on other sites More sharing options...
statesof Posted November 7, 2015 Report Share Posted November 7, 2015 I have some of these symptoms, tiles especially white and black offset ones annoy my vision but I also get afterimages, venetian blings also mess with me visually, and yea a lot of repeating patters than are found on fabrics and shirts can be a bit much to look at at times. I also have depersonalization disorder so I tend to relate these visual symptoms with that. Quote Link to comment Share on other sites More sharing options...
Wufflebear Posted November 8, 2015 Author Report Share Posted November 8, 2015 yes on a bad day Venetian blinds can drive me nuts as well. Thank you for responding. It is good to hear I am not alone on this one.. Folks think I am nuts when I say 'squares bother me." lol Can't blame them. it does sound a bit odd. lol Quote Link to comment Share on other sites More sharing options...
DizzyGirls Posted November 9, 2015 Report Share Posted November 9, 2015 My girls have this problem too. Squares, especially black/white contrast, blinds, stripes, halls, malls, stores with busy clothing and carpeting patterns, text on the page of a book. My husband had to change his wardrobe because the girls couldn't stand the prints of his shirts! Quote Link to comment Share on other sites More sharing options...
dizzyallie Posted November 11, 2015 Report Share Posted November 11, 2015 Yes very bad for past 5 yrs. patterns, stripes, carpets, anything makes me more vertigoey if that's a word. It's been there so long now I don't even remember a time not feeling it. Quote Link to comment Share on other sites More sharing options...
SarahA33 Posted November 11, 2015 Report Share Posted November 11, 2015 Flourescent lighting intensifies it for me also. Hmichel, do you also have blood pooling issues, that could be a reason why your symptoms increase while upright also?Hi, Allie! Have wondered how you were.. hope you are doing well Quote Link to comment Share on other sites More sharing options...
dizzyallie Posted November 11, 2015 Report Share Posted November 11, 2015 Hi Sarah! Still here been pretty rotten. Thanks for noticing. Hope ur managing ok? Quote Link to comment Share on other sites More sharing options...
SarahA33 Posted November 13, 2015 Report Share Posted November 13, 2015 Allie, I am sorry to hear that. Hopefully it's cooled off a bit in your corner of the world so you have a break with the temperature regulation? It's fall here, but I've been struggling a bit with that still. Layering on, off, flushing, goosegumps, etc. etc., you know the drill. Have also been dealing with Raynaud's symptoms quite a bit in my feet this summer, so I'm a bit nervous as to what the winter weather will bring. Take good care of yourself, Sarah Quote Link to comment Share on other sites More sharing options...
Nymph Posted November 14, 2015 Report Share Posted November 14, 2015 Yes, I have always had some sensitivity which I ahve come to think of as a sensory processing issue. However, very busy visual stimuli or moving visual stimuli will exacerbate vertigo if I'm having a bad day. Quote Link to comment Share on other sites More sharing options...
DizzyGirls Posted November 15, 2015 Report Share Posted November 15, 2015 As I stated above, my girls have had this for a few years now, but as we are all agreeing that we have this problem, has anyone found anything to help? I've been researching madly again and it appears to be something called a hyperactive vestibulo-ocular reflex. How do you even it out? My girls have vertigo constantly, my oldest is starting to decondition. The doctor at Stanford in the Autonomic Clinic could not believe the severity of it. He used the words "debilitating, severe, and handicapping all in one sentence! We know this happens, how does it get fixed? We see an ENT on Monday at UCSF, if I get any good advice, I'll let everybody know (not holding my breath, though). Quote Link to comment Share on other sites More sharing options...
Wufflebear Posted November 15, 2015 Author Report Share Posted November 15, 2015 That is a question I would like answered as well. I have a severe allergy to doctors, so I only go if I really, really need to and I can direct them. Quote Link to comment Share on other sites More sharing options...
Nymph Posted November 15, 2015 Report Share Posted November 15, 2015 Hmmm.... My dad (neurologist) said it had something to do with migraine, he thought. I just found this article that explains the association and made sense for my symptoms: http://www.dizziness-and-balance.com/disorders/central/migraine/mav.html Quote Link to comment Share on other sites More sharing options...
Wufflebear Posted November 15, 2015 Author Report Share Posted November 15, 2015 Yea I have pooling issues. they evaluated me for migraines when I was a child, but it I think was more a symptom than the cause. Like after you have been passing out or are having autonommic instability issues.. I get a bad headache.. Quote Link to comment Share on other sites More sharing options...
DizzyGirls Posted November 15, 2015 Report Share Posted November 15, 2015 Nymph,That was an interesting article. I just got done reading it and am actually printing it out. I didn't want it to go away! Quote Link to comment Share on other sites More sharing options...
Nymph Posted November 16, 2015 Report Share Posted November 16, 2015 Glad you liked it. As I was searching, I also came across the statement that hypoperfusion of the inner ear can cause vertigo, and of course most of us have hypoperfusion issues, so that could also be a cause. That might be more liekly for me because I have actually been having much fewer migraines than I used to, so I don't know why they would be causing the vertigo. Quote Link to comment Share on other sites More sharing options...
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