25going on 80? Posted October 31, 2015 Report Share Posted October 31, 2015 Hi i have a assessment bookd at home for my disability benefit just wondering what to expect i have me/ cfs and postral othstatic tacardiya syndrome Quote Link to comment Share on other sites More sharing options...
Guest ANCY Posted October 31, 2015 Report Share Posted October 31, 2015 I was able to get SSI benefits prior to official diagnosis, it was more difficult though and took a lot of help from my treating physicians. Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted October 31, 2015 Report Share Posted October 31, 2015 Yes Robstahlobstah, many members here have been or are on disability. I was on short term (private) disability for a few months. Quote Link to comment Share on other sites More sharing options...
TCP Posted November 2, 2015 Report Share Posted November 2, 2015 I have EDS. POTS and Neuropathy. I was originally diagnosed with 1992 after living with 'ME' symptoms for 8 years. Since then the other more recent diagnoses have altered the situation. I have had to claim benefits because of the severity of my symptoms. Explain all of your symptoms and how they effect your ability or inability to do the set descriptors. I found the following chart very useful as it's all about point scoring. https://www.citizensadvice.org.uk/Global/Migrated_Documents/adviceguide/pip-9-table-of-activities-descriptors-and-points.pdf Quote Link to comment Share on other sites More sharing options...
Katybug Posted November 3, 2015 Report Share Posted November 3, 2015 Is PIP a disability payment system in England? I've never heard any disability referred to in the US by that name. I'm just trying g to clarify so you can get more accurate feedback. Quote Link to comment Share on other sites More sharing options...
Mikey69 Posted November 3, 2015 Report Share Posted November 3, 2015 Hi 25gong on 80,I have severe CFS, severe Fibromyalgia, and have developed Dysautonomia in past two years. needless to say i am rather unwell (understatement).I have much experience of CFS/ME and FMS, Dysautonomia is new to me.I have written a book on living with CFS and FMS here in the UK, and have had many, many dealings with the state benefits system. i am also an academic, and one of my main areas of interest/research is disability/society, etc.best advice i can give atm is three-fold:1) Visit the Benefits and Work website, pay the subscription and download ALL of the information available on PIP. Current PIP legislation is a minefield designed to STOP claimants being successful. The ONLY way you will be successful in your claim to to provide VERY comprehensive details in your PIP form and more importantly, in any 'additional information' you enclose with the form. Get letters of support from your GP, specialists letters, etc.2) If you are being visited at home have someone with you to witness the visit. Have your witness make notes. Further, you need to record the whole thing. The DWP have very specific rules regarding recording, so you will have to meet those requirements (not easy), If you can't meet those requirements try to record surreptitiously. (They MUSTN"T find out).3) prepare your home. The assessor WILL be looking for ways to dispute your claim. basically, your home MUST match up with details in your claim form. For example, if your form states you can't reach upwards then having food in a wall cupboard above your kitchen worktops could go against you, etc. If you state you can't stand for long do you have a chair in every room, etc. DON't let them 'use the bathroom/look around your home unaccompanied - assessors have been known to look in cupboards, wardrobes, etc. This is ILLEGAL, but it happens.I know this may seem like paranoia, but believe me it isn't.I will be migrated from DLA to PIP next year. I'm already filling in my form, additional information, gathering evidence, etc. The trick is to be VERY, VERY PREPARED!I hope this helps,Good Luck,Mike :-) Quote Link to comment Share on other sites More sharing options...
Mikey69 Posted November 3, 2015 Report Share Posted November 3, 2015 Hi Kateybug,I trust and hope that you are as well as you can be?Sorry, just to clarify what PIP is:PIP is Personal Independence Payment. (a UK only benefit) it is a new disability benefit, which replaces the older Disability Living Allowance.It is intended to support the more severely ill UK citizens.Currently in the UK there are two 'main' benefits the sick and disabled can claim; 'Employment and Support Allowance' (WRAG and Support Groups), and 'PIP'. These can be a 'passport' for other support, such as Housing Benefit and Council Tax benefit, BLue badge, etc,Mikei hope this clarifies the situation for users of the forums. Quote Link to comment Share on other sites More sharing options...
Katybug Posted November 3, 2015 Report Share Posted November 3, 2015 Thanks Mike! That was very helpful and is good to know for our future UK members! Quote Link to comment Share on other sites More sharing options...
25going on 80? Posted November 5, 2015 Author Report Share Posted November 5, 2015 Very helpful thank u Quote Link to comment Share on other sites More sharing options...
25going on 80? Posted November 12, 2015 Author Report Share Posted November 12, 2015 *update*Had my pip assessment at home Because my pots the lady didnt do muscle tests as said wouldnt be safe she said she will be sayn i have restrictions that will find out in 4/5weeks Quote Link to comment Share on other sites More sharing options...
corina Posted November 13, 2015 Report Share Posted November 13, 2015 Good luck 25! Quote Link to comment Share on other sites More sharing options...
25going on 80? Posted December 3, 2015 Author Report Share Posted December 3, 2015 I have received pip on i got low mobility only the servly disabled gt enchanted now i got the lower daily living was one of higher only caus speak for myself etc Quote Link to comment Share on other sites More sharing options...
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