Jump to content

His Headache Is Gone!


looneymom

Recommended Posts

It's time for a Happy Post. I wanted to let this news out of the bag last week. Tyler has been on LDN for 9 weeks. This last week, his headache started dropping down again. He dropped from a 6 out of 10 pain level to a 3 and then to 0. I was too afraid to post because when he takes a shower and washes his hair, his headache usually get worse and his vocal tic starts up because of stimulation to his scalp. After shower and hair wash this weekend, his headache is still gone and his vocal tics did not start up while washing his hair. However, he still does have some scalp pain but it is much less. Tyler was started on the LDN because of his hypersensitivie skin issues, headache and severe scalp pain. However, I have noticed some other benefits of this medication. I don't know if I can give LDN all the credit but I feel like it's the main reason for my son's headache to be gone.

Tyler has also been kept on another medication called Namenda. He started this medication in November 2014. His headache was at an 8 out of 10 pain level and did not drop down to the 6/10 pain level until June of this year. Namnda helps regulate NMDAR receptors which in return regulate Gluatmate receptors in the brain. My son has had the testing to verify the high glutamate levels. Through research I found an article from a pain management doctor that has used Namenda and LDN together. The patient had chronic pain issues and was able to wean off the Namenda and go to a lower dosage of LDN. Here is the article on LDN and Namenda.

http://rsdadvisory.com/rsd-complex-regional-pain-syndrome-a-case-report-03032010-nancy-sajben-md/

Link to post
Share on other sites

Rachel,

This is some truly amazing and inspiring news!! I am so happy for Tyler, and for your whole family! It must be so heart warming to finally see Tyler moving in a positive direction and reaching these huge milestones, after all of the stress of seeing his decline! I can't even express how happy I am for him!! (And, you, MamaBear!!)

Link to post
Share on other sites

That is so great!! From one who has had daily headaches and migraines a few times a month I can imagine he is a totally different person !

Fluronif seems to minimizing my headaches and some days have had NO H/A which is amazing

So great to hear he is doing so well. Will keep him in my thoughts

Debbie

Link to post
Share on other sites

That's fantastic. What wonderful news ! Thanks for sharing.

Link to post
Share on other sites

Archived

This topic is now archived and is closed to further replies.

×
×
  • Create New...