little_blue_jay Posted September 11, 2015 Report Share Posted September 11, 2015 For many months now I've been noticing my shortness of breath symptoms getting so much worse for about a week before my period is due. Then within a day or perhaps two of it starting the breathing gets much better.My doctor believes me, I'm grateful for that; he must have other patients who complain of the same thing because he nodded and said 'it feels like you're suffocating' and that describes it pretty much perfectly. Every few minutes I have to take a very deep breath and sigh or it feels like I'm slowly suffocating, even at rest.I've done alot of reading about this online trying to find an explanation - I've seen that there have been studies done on this but that the researchers can't agree on a possible mechanism for it - bronchoconstriction, inflammation, mucus production, or something else. They just give recommendations for more aggressive asthma treatments. But alot of these puffers carry a warning of risk of death by using them! I do have a Ventolin puffer which I rarely use during the other 3 weeks of the month, but in the week before my period I find myself using it more, which I try to avoid as it does make me jittery. Well this past period I used it the one day and I swear I didn't feel any better with the breathing. I said this to my doctor and he writes me a scrip for Symbicort.This tells me the mechanism can't just be bronchoconstriction else the puffer would have helped a bit. I understand its gotta be a hormonal thing, an imbalance of some type, but how? Years ago I got him to run a hormone panel on me and he said everything was normal. He said those types of hormone panels usually come back normal and that probably wouldn't show anything which it didn't. I didn't have this Premenstrual Asthma issue I have now.I have tested positive for certain allergies but they don't give me the typical symptoms like itchy eyes, sneezing, runny nose, etc. I'm allergic to ragweed, grass (severe) and birch tree. I have a mild cat allergy and do have 2 cats but even my allergist said I shouldn't have to give them up if my asthma is well controlled. Everything just gets worse before my period. If it was just the cats it would be all the time.I don't feel wheezy to myself when this happens (but I'm not listening with a stethoscope either)I went and scared myself a couple months ago by reading about "Premenstrual Asthma" and found a case study of a woman who had it so bad she was hospitalized and intubated because of it!!!! If mine keeps getting a bit worse is this gonna be me in a couple years?? (I'm 39 so a few years away from menopause yet!)I asked my doctor is this dangerous and he shook his head no.. but I'm still scared. I dread my period every month, well no, I actually dread the "pre-period" SOB - starting my period makes it go away so I pray for it to start so I can breathe again! Any one else here who has anything like this? Did your doctor give any recommendations for it? Quote Link to comment Share on other sites More sharing options...
Katybug Posted September 12, 2015 Report Share Posted September 12, 2015 There's some interesting studies posted in this thread that may help you and your docs:http://forums.dinet.org/index.php?/topic/26407-pots-dysautonomia-and-hormone-levels/page-2?hl=+menstrual%20+hormones Quote Link to comment Share on other sites More sharing options...
bayone Posted September 18, 2015 Report Share Posted September 18, 2015 Hi there little_blue_jay Yes, Yes, yes! I get the SOB and the tight chest, heavy chest, or pressure ( smothering) . This has been getting worse, and yes, especially a week before my period. Like clockwork. Its bad enough when I am not on my period, I am really uncomfortable with this, even more so a week before my period, ugh!. I had a lung test done, I have had a few Echos, Ekg, CT scan, and all are normal. So they tell me. I have a little leak in my heart valve, but Doc is like " its mild" nothing to worry about. My lung test, hmm, Doc said breathing test was okay and he graded my breathing to be a "B" What? Why not an A? But yeah, I do hope you start to feel better because I know how awful this is and really sympathize with you, and everyone dealing with this. ormally, I lay down, put my feet up, and try to rest or relax. They, if I am able a few times a week, I will walk. My heart rate has ben on the high side lately, and I do not take any meds, ( Too sensitive) but I keep going. If any one has any suggestions about the chronic shortness of breath, I welcome your thoughts, suggestions and experience. Thank you Quote Link to comment Share on other sites More sharing options...
25going on 80? Posted December 8, 2015 Report Share Posted December 8, 2015 I have this it is awful ? Quote Link to comment Share on other sites More sharing options...
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