Jump to content
Search In
  • More options...
Find results that contain...
Find results in...
dancer65

How Long To Recover After Ttt ?

Recommended Posts

Hi

I am just wondering how long it took you to recover after TTT? I had mine 21st July and two days later I had a big decline in myself, I still cant return to work I spending half a day in bed. I am back on florinef which was helping before the test and doing all the usual recommended things but I am not seeing any improvement. Hoping someone can tell me this is normal reaction and there is light at the end of the tunnel :)

Many thanks

Share this post


Link to post
Share on other sites

Hi Dancer,

It took me about 2 weeks before I felt back to my normal feeling if I remember correctly. Back then was a difficult time though as I wasn't really able to get out of bed, IV fluids were most helpful for me as well as compression stockings. I know I feel really symptomatic after pushing myself through certain activities and long days, so it would make sense that a tilt table test could do that to the extreme.

I'm sorry you aren't feeling well, I know you've got a physically demanding job also. I hope that with each new day you start to feel better!

Sarah

Share this post


Link to post
Share on other sites

Hang in there dancer. This was a very emotional time for me as well, it got better though. We're here to offer support and to let you know that you aren't alone in feeling like this. Do you have a follow up appointment with your doctor coming up soon?

Share this post


Link to post
Share on other sites

I understand this feeling! You want answers and the information that testing may bring...but when it makes you feel worse you think , "Why did I put my body through that?". I think it took me a couple of weeks after the tilt to start feeling the way I was.

Share this post


Link to post
Share on other sites

After my first tilt test it took me about 10 days to recover, and I was feeling awful for those 10 days. During that test I did pass out and have a 16 second pause in my heart beat. The second tilt test was much better, but they caught my blood pressure dropping and aborted the test before I went out, that time took about a day and a half to recover.

Sorry you're not feeling good. Hope you recover soon!

Share this post


Link to post
Share on other sites

Thanks you for your replies and well wishes it really does help!

Yes Sarah I had blood tests for E&U last monday also blood count as I am bruising very easily on the florinef. I see my GP next week but wont be seeing the consultant again who did my test.

Share this post


Link to post
Share on other sites

My dsughter was only having minor symptoms prior to her ttt, but has been steadily going downhill since the test in january. She did faint within a minute but according to many doctors the ttt should not of caused her body to crash. Hope u feel better soon.

Share this post


Link to post
Share on other sites

Thank you! I am sorry to read your daughter crashed I was warned it could make me feel ill for a few days so wasn't expecting it to be this long.

Hope you find some thing that helps your daughter soon, wish you luck x

Share this post


Link to post
Share on other sites

about 2 weeks for me.

but btw, you should try to stay out of bed as much as you can...it doesn't help, only makes things worse. keep moving as much as you can, even if you don't feel well enough to return to work. get out of the house...do chores...see friends...stay on your normal routine as much as you can. going out in the daylight helps with sleep quality at night. worst thing in the world for POTS, from my experience, is staying in bed...your muscles decay fast, and then it's hard to recondition.

Share this post


Link to post
Share on other sites

I took the tilt table test 3 weeks ago and still have not fully recovered. I fainted 24 minutes into the test followed by bad nausea and throwing up. Now I wake up every morning feeling nauseated and most of the time need to take meds for the nausea.

Carlos

Share this post


Link to post
Share on other sites

tampafd, watch out for those anti-nausea meds...Phenergan causes high heart rate, and Zofran causes constipation and can cause seizures if you're predisposed. sometimes ginger can help...the fresh root, smelling it or mixing it finely chopped into something you eat or boiling it into a tea (but be careful there also because too much ginger causes polyuria).

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


×
×
  • Create New...