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Paroxysmal Autonomic Instability With Dystonia (Paid)


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My daughter has recently been diagnosed with PAID. How is this condition related to Dysautonomia, if at all? My daughter is non-verbal secondary to Cerebral Palsy, so she cannot describe what she experiences. Is there anyone who has this diagnosis who can talk to me about it, and help me understand what she is going through? I am also looking for a physician who specializes in this disorder, or at least who is experienced with it, and who is in the Toronto Ontario area. Anyone have any suggestions?

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Hi LindaRose,

Here is a link to our physicians list. You can search it for any Canadian physicians. I know there are a few in your area.

http://dinet.org/index.php/physician-list?view=physicians

I don't know anything about your daughter's diagnosis but I will do some research and see if I can find some papers for you. I will post them here if I find anything.

Take care,

Katie

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