emartins Posted May 25, 2015 Report Share Posted May 25, 2015 Just wondering if people with POTS get generally itchy skin. It's been interfering with my sleep lately. I've been relatively asymptomatic so far this year so it's probably something else, but wanted to check Quote Link to comment Share on other sites More sharing options...
Katybug Posted May 25, 2015 Report Share Posted May 25, 2015 I have extremely itchy skin and a variety of rashes. I also can't use lotions/moisturizers as I react to them (even prescription stuff from the dermatologist. ) However, I believe this is more related to my MCAS than my POTS. Quote Link to comment Share on other sites More sharing options...
artluvr09 Posted May 25, 2015 Report Share Posted May 25, 2015 ove had a weird rash since october 2014 and When i am hot or just get out of the shower it flares and I get itchy. Its strange. Plus the past couple days I have just been itchy! For no reason and no rash where I am itchy! Quote Link to comment Share on other sites More sharing options...
angelloz Posted May 25, 2015 Report Share Posted May 25, 2015 When I get hot I get itchy. I wonder too if it is mast cell or autonomic related. Quote Link to comment Share on other sites More sharing options...
Christy_D Posted May 27, 2015 Report Share Posted May 27, 2015 My son has itchy skin when he gets hot or takes too hot of a shower. His is from his MCAS. It is better under control since he takes the antihistamines and other meds for the MCAS. Quote Link to comment Share on other sites More sharing options...
Chaos Posted May 27, 2015 Report Share Posted May 27, 2015 Definitely have issues with itching and rashes. Thought it was MCAS related but as I've been playing with methylation and mitochondrial support supplements, I have found I can generally impact the itching and rashes more with balancing methyl B12, methyl folate and potassium than with all the antihistamines I take. Quote Link to comment Share on other sites More sharing options...
pooter18 Posted May 27, 2015 Report Share Posted May 27, 2015 i itch constantly all the way around my jaw line feel like taking a brillo pad to it... !!!!!!!!!!! sometimes my arms and other areas but always my jaw ....drives me insane have tried just about everything to calm it down..wish i knew what was causing it ..no rash or bumps or dry skin just itches ...weird Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted June 3, 2015 Report Share Posted June 3, 2015 Yes. Was informed its caused by changes in small fibers Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted June 5, 2015 Report Share Posted June 5, 2015 I have itching due to small fiber neuropathy. It happens mostly at night, jumps around my body and is not associated with rash. Very annoying symptom. There is an abstract about it, but I am unable to paste anything here. Why is that? Anyway, if anyone wants to look it up.. the title is "Pruritus: an underrecognized symptom of small-fiber neuropathies" by Brenaut E., et al. Conclusion is: Pruritus occurs frequently in patients with SFN and could be recognized as a possible presenting symptom, especially if there are other sensory or autonomic symptoms. Quote Link to comment Share on other sites More sharing options...
sue1234 Posted June 5, 2015 Report Share Posted June 5, 2015 Mine happens if I get out in the heat. I don't get a visible rash, just as I get hotter, I get itchier. I have quit sweating for the most part, so I am picturing things going on around the sweat glands to cause this. Maybe trapped/built up toxins, etc. Just my little theory and probably wrong. Oh, and when I do begin to itch, it happens mostly on my torso. Quote Link to comment Share on other sites More sharing options...
corina Posted June 5, 2015 Report Share Posted June 5, 2015 Naomi, I know of another member that can't copy and paste. We haven't found out why, sorry! Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted June 6, 2015 Report Share Posted June 6, 2015 yes Naomi mine is also at night and it drives me nuts. Quote Link to comment Share on other sites More sharing options...
issie Posted June 15, 2015 Report Share Posted June 15, 2015 Mast cells tend to degranulate worse at night. Ive found that two things help the itching and I rotate what I use. Over the counter hydrocortisone cream or NasalCrom sprayed on skin where it itches. Issie Quote Link to comment Share on other sites More sharing options...
Hello Darling Posted March 2, 2016 Report Share Posted March 2, 2016 I'm super itchy too. Especially when I get out of the shower. Quote Link to comment Share on other sites More sharing options...
issie Posted March 23, 2016 Report Share Posted March 23, 2016 I've been trying more organic, less chemical products. I found a place that will send samples so you can try them before you purchase. I have found my shampoo and conditioner makes a difference. I wash my hair in the shower and the product gets on your skin. I'm also using more organic, natural soaps. Making a difference. The name of the store is online and is called Revescent. Issie Quote Link to comment Share on other sites More sharing options...
TCP Posted March 24, 2016 Report Share Posted March 24, 2016 MCAS and POTS. I get very itchy are eating. I have had to change my diet so much in the past year. I will get there. Avoid high histamine foods. Quote Link to comment Share on other sites More sharing options...
yogini Posted March 25, 2016 Report Share Posted March 25, 2016 I don't have mast cell, MCAS or anything else (other than seasonal allergies). I because I have trouble staying hydrated, my skin is very dry and sensitive. I think this is a pretty common symptom for POTS even without the co-conditions. If you have a rash or something else that seems like an allergic reaction, I'd see a dr about it. We are all so very different - and allergic reactions can be dangerous. Quote Link to comment Share on other sites More sharing options...
Hello Darling Posted March 27, 2016 Report Share Posted March 27, 2016 After years of not being able to find anything that works, I finally found something! I've been using Cerave soap and Amlactin lotion (I use Cerave pm lotion on my face). It seems to have helped the itching a lot. I totally agree Yogini- my skin just seems extremely dry and sensitive. Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted March 30, 2016 Report Share Posted March 30, 2016 So some get it from MCAD and some like me get it from SFN Quote Link to comment Share on other sites More sharing options...
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