Breathing Issues

[mygooddogs]

I have been having terrible breathing issues. I keep gasping for air (usually after a "hot attack"). I keep breathing in but can't let the air out. It is terrifying. I went to the ER once and got a doctor who knew nothing about Dysautonomia and sent me home. Does anyone else have this issue? It is becoming a bigger, more common occurrence. Thanks

[corina]

I don't personally have that but know lots of people do. It must be quite scaring!

[Katybug]

When you say you can't get the air out, what do you mean? Have you been tested for asthma? Many don't realize that asthma is actually caused by not being able to push air out of the lungs to let new air in, therefore leaving the person feeling like they can't get air.

[bethanyh]

I feel this way constantly. Shortness of breath and appropriate breathing are my biggest struggles. I was put on an oxygen meter for one night and my oxygen level never dropped below 92% (I am actually starting a new post about this) but all day and night I feel like I am breathing through a straw and cannot get air out then have trouble getting air in...I feel like a COPD commercial! During the night, I often wake gasping for air and find myself trying to take deep breaths all day but then have trouble inhaling and exhaling.

[Sunshinegirl]

I cant say that I know exactly what you are talking about but somewhat. Years ago before all junk broke loose, I would wake due to not breathing. I had dreams that I was drowning and my brain woke me up. Then I would have to consciously breathe until things let up. I would be awake and doing things and then the world would phase out and I realized I was not breathing. I would gasp and do nothing but try to breathe. during this time I had a very low thumping heart rate that was scary. I did not feel like I was breathing through a straw. I turned my attention to yoga breathing techniques and that seemed to help quite a bit.

Years later, my heart rate goes to above 200 and rarely below 100 upon sitting and doing nothing. Iv always wondered about those years when my body/ brain began messing up....and what it has led to now. No persons story is the same by any means but there is a common thread. One thing that did stay the same for me is very low blood pressure. Reading your other post...going to the emergency room is more like a band aid than a real answer. When I feel like I am in real danger, I go...but otherwise, I avoid them. If I go in with low BP and high HR it is an easy IV bag...but it costs waaay too much unless I am desperate.

You mentioned hr issues but not too much else???? more clues might help engage others.

[mygooddogs]

I contacted my neurologist for the third time this week with no response to my breathing issue. I love the doctor but can't stand the lack of response. I've been to Cleveland Clinic, which concurred with all his findings but I need someone more responsive. Any suggestions on a neurologist in the central Ohio area? I need help without going to the ER all the time. The ER just gets you to the point where you can go home and suggests seeing your doctor. Great idea. My doctor is never available.

[Katybug]

Hi SusanB,

Here is a link to our physicians list. You may be able to find someone on here. Hopefully, you might also get some suggestions from our members in that area.

http://dinet.org/index.php/physician-list

Take care,

Katie

[shathaway0811]

I get short of breath when I talk. I've only noticed this over the past couple of months, and my heart rate recently has been ridiculously irregular and random (irregular in that it will get really high for no reason and really low in certain situations). I also experience that low, thumping heart rate that causes me to have a painful pressure in my head in these situations. I haven't seen anyone yet about all this so I can't really make a suggestion, but you're not alone!