TCP Posted April 29, 2015 Report Share Posted April 29, 2015 Hello.Does anyone else have gorged irritating veins in sensitive places, like buttocks and lady parts? I know pregnant ladies can get them. I just wondered if anyone else has them and what was done about them? ThanksTCP Quote Link to comment Share on other sites More sharing options...
Katybug Posted April 29, 2015 Report Share Posted April 29, 2015 Yes. I thought I had a cyst on my lady parts and went to my gyn. She said it is a vericose vein and that she's only ever seen them in pregnant women. But she thought it might be from my EDS.Since then I have been having a work up with a hematologist for hypercoagulability syndromes due to my uncontrolled and now daily migraines. It is turning out that I do have the PAI 4G/5G Homozygous gene mutation which makes me a clotting risk. There are other abnormalities in my blood work that we are now retesting for the 3rd time because things are not making sense. In researching, I have found that a "rash" I've been getting on my hips, breasts, thighs, and lower abdomen is not a rash or stretch marks as doctors have been telling me but actually vascular skin lesions called levido reticularis and levido racemosa. I kept telling them I thought they were vascular but only one doc bought that because in fairness they do look similar to stretch marks. But they don't behave like stretch marks. They change color based on orthostatics, they come and go, they get worse when I am in an inflammatory flare. They aren't at all painful or itchy, just ugly and turn from almost flesh colored to a brilliant shade of magenta to dark purple. I tell you all this because I now believe the varicose vein in my labia is actually related to this. Quote Link to comment Share on other sites More sharing options...
Katybug Posted April 30, 2015 Report Share Posted April 30, 2015 P.S. My GYN did say that if the vein became a problem to see a vascular surgeon. But, being as I have EDS, I wouldn't consider that option unless things became truly unbearable as I don't no how that healing process would be on such sensitive tissue. Quote Link to comment Share on other sites More sharing options...
Katybug Posted April 30, 2015 Report Share Posted April 30, 2015 P.P.S. She also said men can get these too in their scrotum. They are called varicoceles. Unfortunately, this isn't a female only issue.http://www.mayoclinic.org/diseases-conditions/varicocele/basics/definition/con-20024164 Quote Link to comment Share on other sites More sharing options...
Katybug Posted April 30, 2015 Report Share Posted April 30, 2015 http://tennesseeveincare.com/vein-conditions/pelvic-ovarian-vein-reflux Quote Link to comment Share on other sites More sharing options...
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