andybonse Posted April 21, 2015 Report Share Posted April 21, 2015 Hey,I posted a while back about a shortness of breath I get and at rest.I recently had a Lung CT Scan, Pulmonary function tests and a echocardiogram. All Perfect.Which leads me to believe it is my dysautonomia causing the issue.Recently it has improved as have all my symptoms a lot, compared to how I was last year and am going out pretty much everyday.I am also driving again which is pretty cool!!!I have been able to up my florinef which has helped the tachycardia and my head symptoms dramatically.It does drop my potassium so I am going to find out how much potassium supplements I need to hold me on this dose.Last time I thought florinef made me breathing worse, but will soon see, so far so good. So maybe being upright all day everyday has helped symptoms and some sort of adaptation. Quote Link to comment Share on other sites More sharing options...
andybonse Posted April 21, 2015 Author Report Share Posted April 21, 2015 To Add - I do find when I get a common cold, or upper respiratory infection, my breathing is GREAT!?!? LOL? weird! Quote Link to comment Share on other sites More sharing options...
Katybug Posted April 21, 2015 Report Share Posted April 21, 2015 Andy! I'm so glad to hear you've made some improvement and that you can drive again! That must have been big! Great hearing from you! Quote Link to comment Share on other sites More sharing options...
SarahA33 Posted April 21, 2015 Report Share Posted April 21, 2015 Hi Andy,Nice to know you are feeling better! Thanks for coming back to let us know! Quote Link to comment Share on other sites More sharing options...
corina Posted April 22, 2015 Report Share Posted April 22, 2015 Good for you Andy! Glad to hear you are getting closer to living a more normal life! Enjoy! Quote Link to comment Share on other sites More sharing options...
sue1234 Posted April 22, 2015 Report Share Posted April 22, 2015 That's great! I can imagine breathing issues can be scary, so getting that sorted out must feel wonderful! So you think the Florinef is what helped? Quote Link to comment Share on other sites More sharing options...
gjensen Posted April 23, 2015 Report Share Posted April 23, 2015 This is great to hear Andy. Quote Link to comment Share on other sites More sharing options...
Parages Posted April 25, 2015 Report Share Posted April 25, 2015 I've been having issues with shortness of breath as well the past week. Is there anything that can be done to help alleviate it? I've been doing the usual water/salt but doesn't seem to be impacting it. It makes me really nervous. Quote Link to comment Share on other sites More sharing options...
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