db2504 Posted April 15, 2015 Report Share Posted April 15, 2015 My daughter had her second tilt table test and her heart rate girs up above the 30 bpm but then does nit stsy fixed. It suddenly drops diwn into tve 40's. Dies anyone else have tbis happen? If so were u still given a POTS diagnosis? Niw her doctor is going to do a sweat test to chech fir an abnormality with that so he can diagnose her properly. We r so confused!!! Quote Link to comment Share on other sites More sharing options...
Katybug Posted April 16, 2015 Report Share Posted April 16, 2015 Hi! I don't know what the diagnosis would be for these numbers but clearly something isn't right. The sweat test is one thing that helps diagnose peripheral neuropathy. Quote Link to comment Share on other sites More sharing options...
db2504 Posted April 17, 2015 Author Report Share Posted April 17, 2015 Oh. He said if she has an abnormal sweat test then she does have Pots but if not she has NMS. But i wiuld think if she had NMS she would have fainted at least once. Also what contributes to someone getting NMS. Quote Link to comment Share on other sites More sharing options...
Kkb1216 Posted April 17, 2015 Report Share Posted April 17, 2015 I have NMS, and I only faint if I ignore all my warning signs. I know better, but I sometimes try to push through. It's incredibly stupid, but I can't seem to help myself. As doctors are learning more about dysautonomia, they are coming up with new ways to categorize it. The label NMS is also know as neurally mediated hypotension, neurally cardiogenic syncope/hypotension... I think there are more. You don't have to faint to have NMS. I have no idea why I have NMS. I can say I get quite classic signs before a serious episode. I get hot, begin to sweat, nauseous and black spots... Oh look there is the floor... My heart rate Never dropped. It went up in the 160`s and only fell 30 points when they laid me back down. I also slept in 12 hour clips for several days after the test if I remember right.We are all so different. It's no wonder not all doctors are up to speed. I am so glad her doctor is doing a great follow up test. Hang in there! -K Quote Link to comment Share on other sites More sharing options...
SarahA33 Posted April 18, 2015 Report Share Posted April 18, 2015 http://www.ndrf.org/ParoxymalAutonomicSyncope.htm Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.